ACAD Publications

Australian Child to Adult Development (ACAD) study Publications

2016
Rice, L. J., Gray, K. M., Howlin, P., Taffe, J., Tonge, B. J., & Einfeld, S. L  (2016). The developmental trajectory of self-injurious behaviours in individuals with Prader Willi Syndrome, Autism Spectrum Disorder and intellectual disability. Diseases, 4(1), 9. doi:10.3390/diseases4010009.

2015
Makary, A. T. , Testa, R., Tonge,B. J.,  Einfeld, S. L., Mohr, C. & Gray, K. M. (2015).  Association between adaptive behaviour and age in adults with Down syndrome without dementia: Examining the range and severity of adaptive behaviour problems. Journal of Intellectual Disability Research, 59(8), 689-702. doi:10.1111/jir.12172

Rice, L. J., Gray, K. M., Howlin, P., Taffe, J., Tonge, B. J., & Einfeld, S. L. (2015). The developmental trajectory of disruptive behavior in Down syndrome, Fragile X syndrome, Prader Willi syndrome and Williams syndrome. American Journal of Medical Genetics Part C, 169C, 182-187. doi:10.1002/ajmg.c.31442

2014
Gray, K. M., Piccinin, A. M., Keating, C. M., Parmenter, T., Hofer, S. M., Einfeld, S. L., & Tonge, B. J. (2014). Outcomes in young adulthood: Are we achieving community participation and inclusion? Journal of Intellectual Disability Research, 58(8), 734-745. doi:10.1111/jir.12069

Gray, K. M., Taffe, J. R., Keating, C. M., Brereton, A. V., Einfeld, S. L., Reardon, T. C. & Tonge, B. J. (2014). Adult outcomes in autism: Community inclusion and living skills. Journal of Autism and Developmental Disorders, 44(12), 3006-3015. doi: 10.1007/s10803-014-2159-x

2012
Gray, K. M., Taffe, J. R., Keating, C. M., Brereton, A. V., Einfeld, S. L., & Tonge, B. J. (2012). The trajectory of behaviour and emotional problems in autism. American Journal on Intellectual and Developmental Disabilities, 117(2), 121–133. doi: http://dx.doi.org/10.1352/1944-7588-117-2.121

2011
Gray, K. M., Piccinin, A. M., Hofer, S. M., Mackinnon, A., Bontempo, D. E., Einfeld, S. L., Parmenter, T., & Tonge, B. J. (2011).  The longitudinal relationship between behavior and emotional disturbance in young people with intellectual disability and maternal mental health. Research in Developmental Disabilities, 32, 1194-1204. doi:10.1016/j.ridd.2010.12.044

2010
Einfeld, S. L., Gray, K. M., Ellis, L., Taffe, J. R., Emerson, E., Tonge, B. J., Horstead, S. K. (2010). Intellectual disability modifies gender effects on disruptive behaviors. Journal of Mental Health Research in Intellectual Disabilities, 3, 177-189. doi:http://dx.doi.org/10.1080/19315864.2010.519098

2009
Hofer, S. M., Gray, K. M., Piccinin, A. M., Mackinnon, A., Bontempo, D. E., Einfeld, S. L., Hoffman, L., Parmenter, T., & Tonge, B. J. (2009). Correlated and coupled within-person change in emotional and behavior disturbance in individuals with intellectual disability: Results from the Australian Child to Adult Development (ACAD) study.  American Journal on Intellectual and Developmental Disabilities, 114(5), 307-321. doi:http://dx.doi.org/10.1352/1944-7558-114.5.307

2008
Bontempo, D. E., Hofer, S. M., Mackinnon, A. J., Piccinin, A. M., Gray, K. M., Einfeld, S. L., & Tonge, B. J. (2008). Factor structure of the Developmental Behavior Checklist using confirmatory factor analysis of polytomous indicators. Journal of Applied Measurement, 9(3), 265-280.

Taffe, J. R., Tonge, B. J., Gray, K. M., & Einfeld, S. L. (2008). Extracting more information from behaviour checklists by using components of mean based scores. International Journal of Methods in Psychiatric Research, 17(4), 232–240. doi:10.1002/mpr.260

2007
Einfeld, S. L., Tonge, B. J., Gray, K. M. & Taffe, J. R. (2007).  Evolution of symptoms and syndromes of psychopathology in young people with mental retardation.  International Review of Research in Mental Retardation – Developmental epidemiology of mental retardation and developmental disabilities, 33, 247-265. doi: 10.1016/S0074-7750(06)33010-8

Taffe, J. R., Gray, K. M., Einfeld, S. L., Dekker, M. C., Koot, H. M., Emerson, E., Koskentausta, T., & Tonge, B. J. (2007).  A short form of the Developmental Behaviour Checklist. American Journal on Mental Retardation, 112(1), 31-39. doi:10.1352/0895-8017(2007)112[31:SFOTDB]2.0.CO;2

2006
Brereton, A. V., Tonge, B. J., & Einfeld, E. L. (2006). Psychopathology in children and adolescents with autism compared to young people with intellectual disability. Journal of Autism and Developmental Disorders, 36(7), 863-870. doi:10.1007/s10803-006-0125-y

Einfeld, S. L., Kavanagh, S. J., Smith, A., Evans, E. J., Tonge, B. J., & Taffe, J. R. (2006). Mortality in Prader-Willi syndrome. American Journal on Mental Retardation, 111(3), 193-198. doi:10.1352/0895-8017(2006)111[193:MIPS]2.0.CO;2

Einfeld, S.L., Piccinin, A.M., Mackinnon, A., Hofer, S.M., Taffe, J., Gray, K.M., Bontempo, D.E., Hoffman, L.R., Parmenter, T., Tonge, B.J. (2006), Psychopathology in young people with intellectual disability. Journal of the American Medical Association, 296(16), 1981-1989. doi:10.1001/jama.296.16.1981

2003
Tonge, B. J., & Einfeld, S. L. (2003). Psychopathology and intellectual disability: The Australian Child to Adult Longitudinal Study. International Review of Research in Mental Retardation, 26, 61-91. doi:10.1016/S0074-7750(03)01002-4

2002
Sherrard, J., Tonge, B. J., & Ozanne-Smith, J. (2002). Injury risk in young people with intellectual disability. Journal of Intellectual Disability Research, 46(1), 6-16. doi:10.1046/j.1365-2788.2002.00346.x

2001
Einfeld, S. L., Tonge, B. J., & Rees, V. W. (2001).  Longitudinal course of behavioural and emotional problems in Williams syndrome. American Journal on Mental Retardation, 106(1), 73-81. doi:10.1352/0895-8017(2001)106<0073:LCOBAE>2.0.CO;2

Sherrard, J., Tonge, B. J., & Ozanne-Smith, J. (2001). Injury in young people with intellectual disability: Descriptive epidemiology. Injury Prevention, 7, 56-61. doi:10.1136/ip.7.1.56

2000
Lewis, J. N., Tonge, B. J., Mowat, D. R., Einfeld, S. L., Siddons, H. M., Rees, V. W. (2000). Epilepsy and associated psychopathology in young people with intellectual disability. Journal of Paediatrics and Child Health, 36(2), 172-175. doi:10.1046/j.1440-1754.2000.00487.x

Partington, M., Mowat, D., Einfeld, S. L., Tonge, B. J., & Turner, G. (2000). Genes on the X chromosome are important in undiagnosed mental retardation. American Journal of Medical Genetics, 92(1), 57-61. doi:10.1002/(SICI)1096-8628(20000501)92:1<57::AID-AJMG10>3.0.CO;2-0

Tonge, B. J., & Einfeld, S. L. (2000). The trajectory of psychiatric disorders in young people with intellectual disabilities. Australian & New Zealand Journal of Psychiatry, 34(1), 80-84. doi:10.1046/j.1440-1614.2000.00695.x

1999
Einfeld, S. L., Smith, A., Durvasula, S., Florio, T., & Tonge, B. J. (1999). Behavior and emotional disturbance in Prader-Willi syndrome. American Journal of Medical Genetics, 82(2), 123-127. doi:10.1002/(SICI)1096-8628(19990115)82:2<123::AID-AJMG4>3.0.CO;2-C

Einfeld, S. L., & Tonge, B. J. (1999). Observations on the use of the ICD-10 Guide for Mental Retardation. Journal of Intellectual Disability Research, 43(5), 408-412. doi:10.1046/j.1365-2788.1999.043005408.x

Einfeld, S. L., Tonge, B. J., & Turner, G. (1999). Longitudinal course of behavioural and emotional problems in Fragile X syndrome. American Journal of Medical Genetics, 87(5), 436-439. doi:10.1002/(SICI)1096-8628(19991222)87:5<436::AID-AJMG13>3.0.CO;2-

Einfeld, S. L., Tonge, B. J., Turner, G. Parmenter, T., & Smith, A. (1999). Longitudinal course of behavioural and emotional problems of young persons with Prader-Willi, Fragile X, Williams and Down Syndromes. Journal of Intellectual and Developmental Disability, 24(4), 346-354.

1998
Parmenter, T. R., Einfeld, S. L., Tonge, B. J., & Dempster, J. A. (1998). Behavioural and emotional problems in the classroom of children and adolescents with intellectual disability. Journal of Intellectual and Developmental Disability, 23(1), 71-77. doi:http://dx.doi.org/10.1080/13668259800033591

1997
Einfeld, S. L., Tonge, B. J., & Florio, T. (1997). Behavioral and emotional disturbance in individuals with Williams syndrome. American Journal of Mental Retardation, 102(1), 45-53. doi:http://dx.doi.org/10.1352/0895-8017(1997)102<0045:BAEDII>2.0.CO;2

Sherrard, J., Tonge, B. J., & Einfeld, S. L. (1997). Behaviours in young people with intellectual disability: Preliminary findings and implications for injury. Journal of Intellectual and Developmental Disability, 22(1), 39-48. doi:http://dx.doi.org/10/1080/13668259700033281

1996
Einfeld, S. L., & Tonge, B. J. (1996). Population prevalence of behavioural and emotional disturbance in children and adolescents with mental retardation: I Rationale and methods. Journal of Intellectual Disability Research, 40(2), 91-98.

Einfeld, S. L., & Tonge, B. J. (1996). Population prevalence of behavioural and emotional disturbance in children and adolescents with mental retardation: II Epidemiological findings. Journal of Intellectual Disability Research, 40(2), 99-109.

Tonge, B. J., Einfeld, S. L., Krupinski, J., Mackenzie, A., McLaughlin, M., Florio, T., & Nunn, J. R. (1996). The use of factor analysis for ascertaining patterns of psychopathology in children with intellectual disability. Journal of Intellectual Disability Research, 40(3), 198-207. doi:10.1111/j.1365-2788.1996.tb00623.x

1994
Einfeld, S. L., Tonge, B. J., & Florio, T. (1994). Behavioural and emotional disturbance in Fragile X syndrome. American Journal of Medical Genetics, 51(4), 386-391. doi: 10.1002/ajmg.1320510417

1991
Einfeld, S. L., & Tonge, B. J. (1991). Psychometric and clinical assessment of psychopathology in developmentally disabled children. Australia and New Zealand Journal of Developmental Disabilities, 17(2), 147-154.

Tonge, B. J., & Einfeld, S. L. (1991). Intellectual disability and psychopathology in Australian children. Australia and New Zealand Journal of Developmental Disabilities, 17(2), 155-167.