Chronic and Complex Healthcare Services Research Group

The Chronic and Complex Healthcare Services research group is part of the Healthy Ageing Research group within the Department of Medicine.

Group Head

Research focus

The Chronic and Complex Healthcare Services research group undertakes high quality research to improve quality of life though optimal healthcare management for people with severe or chronic health conditions.

Research aims to improve healthcare through projects that:

  • intersect the needs of the patient and clinical team
  • are feasible and acceptable to the broad target patient population,
  • are scalable
  • are able to be implemented within current healthcare system resources.

Research projects

Improving detection and treatment of mental health issues in people with chronic illness

Projects

  • Improving detection and treatment of depression in people with multiple sclerosis through neurology healthcare services
    • Qualitative and quantitative assessment of current practices, barriers and facilitators to detection and treatment of depression in people with MS
    • Validation of a practical depressive symptom screening tool in MS clinics
    • Characterisation of depressive symptom presentation in people with MS
    • Development, iterative implementation and assessment of recommendations and guidelines for improved healthcare services management
Collaborative investigators and advisory teamStaff and students
  • A/Prof Ernest Butler, Monash Health, Peninsula Health, Frankston Neurology
  • Ms Michelle Allan, Monash Health & Peninsula Health, Frankston Neurology
  • Dr Nevin John, Monash Health & Frankston Neurology
  • Prof Jayashri Kulkarni, Monash University
  • Prof Barbora De Courten, Monash University
  • Dr Deepa Rajendran, Monash Health, Frankston Neurology
  • Mr Andrew Giles, MS Australia
  • Dr Sally Shaw, Focused Health Psychology
  • Prof Ron Borland, University of Melbourne
  • Prof Karen Leigh Edward, Swinburne University
  • Dr Jennifer Neil, Monash University, Belmore Road Medical Clinic
  • Ms Jodi Haartsen, MS Limited
  • Mr Matthew Vella, The Talk Shop
  • Ms Ruby Hamer
  • Mr Joshua Mardan

Treatment burden and medication adherence in chronic illness

Projects

  • STATURE: Relationship Between Oral Disease Modifying Treatment Burden and Adherence in MS
Collaborative investigators Staff and students
  • A/Prof Ernest Butler, Monash Health, Peninsula Health, Frankston Neurology
  • Ms Michelle Allan, Monash Health & Peninsula Health, Frankston Neurology
  • Ms Adriana Cartwright, St Vincent’s Hospital
  • Mr Tim O’Maley, MS Queensland, Princess Alexandra Hospital
  • Ms Sharryn Savickas, Barwon Health
  • Ms Meena Sharma, Liverpool Hospital
  • Mr Paul Stockle, Specialists on College
  • Ms Belinda Bardsley, Austin Health
  • Mr Joshua Mardan
  • Ms Janet Harding
  • Ms Ruby Hamer

Bone Health in Multiple Sclerosis

Projects

  • Improving bone healthcare management for people with multiple sclerosis

Collaborative investigator

  • Dr Ayse Zengin

Multiple Sclerosis Lived Experience Advisory Committee

  • Mr Andrew Potter (Chair), TAS
  • Mr Nigel Caswell, VIC
  • Ms Catrina Chisholm, WA
  • Ms Astrid Edwards, VIC
  • Ms Vanessa Fanning, ACT
  • Ms Sonia Marcon, VIC
  • Ms Julie Newbury, NSW
  • Ms Natalie Walsh, QLD
  • Dr Mary Webb, ACT

Disability and chronic illness patient-centred language

Projects

  • The Person-first versus identity-first language debate: Informing client-centred care
  • Person-first versus identity-first language preferences: parent and carer’s perspective

Collaborators

  • Prof Donna Koller, Ryerson University, Canada
  • Dr Amanda Olley, Charles Sturt University, University of New South Wales

Multinational Association of Supportive Cancer Care (MASCC)

Projects

  • MASCC Survivorship working group
    • Clinicians use of patient reported outcomes
    • Clinicians use of exercise guidelines working group
  • MASCC Neurological complications in cancer care interest group
    • Cognitive rehabilitation systematic review
    • Patient experiences of chemotherapy induced peripheral neuropathy (CIPN) working group
    • Non-pharmacological working group

International collaboration

  • Multinational Association of Supportive Care in Cancer (MASCC)

Embedding patient reported outcomes in oncology

Projects

  • Improving bone healthcare management for people with multiple sclerosis
Collaborators Staff and students
  • Prof Eva Segalov (project lead), Monash Health, Monash University
  • Dr Kate Webber (project coordinator), Monash Health, Monash University
  • Mr Alastair Kwok

COVID-19 Vaccine Hesitancy

Projects

  • CANVACCS, DIABVACCS, MSVACCS
    • Validation of a disease specific COVID-19 hesitancy scale
    • Understanding COVID-19 vaccine hesitancy in people with severe and chronic illness
  • SerOzNet
    • Changes in hesitancy between COVID-19 doses dependent on side-effects
Collaborators Staff and students
  • Prof Eva Segalov (project lead), Monash Health, Monash University
  • Dr Daphne Day, Monash Health, Monash University
  • Dr Mike Nguyen, Monash Health, Monash University
  • Dr Nathan Bain, Monash Health, Monash University
  • Dr Amy Body, Monash Health
  • Mr Alastair Kwok