Patient reported outcome measures (PROMs) for clinical registries - PDM1146

This practical course has been designed for clinicians, researchers, registry coordinators and other healthcare professionals planning to or currently collecting PROMs, and will be based on a conceptual framework model and guidelines for the use of PROMs in clinical registries.

This introductory one-day course will give an overview of topics ranging from methodological development through to dissemination of PROMs data, including:

  • What is a PROM and why use them?
  • A look at the different types of information we can get from a PROM
  • Instruments used to collect PROMs
  • Disease and treatment specific PROMs vs generic instruments
  • Development and validation of PROMs
  • Item banks and their use in clinical registries
  • Ethics and consent for PROMs collection
  • Interpreting and presenting PROM data in a registry setting

The workshop is aimed at a non-technical audience and is suitable for people without previous experience in PROMs.

Presenter: Dr. Rasa Ruseckaite

Learning objectives:

  • Equip participants with a practical understanding of the key concept around PROMs – what they measure and why use them in a clinical registry setting.
  • Provide delegates with practical guidance on choosing the appropriate PROM based on a conceptual framework model and guidelines for the use of PROMs in clinical registries.
  • Gain greater insight into the different types of PROMs available, issues of validity and reliability, interpretation, data analysis and reporting in a registry setting.
Show more
Fees

Early bird: $500 incl. GST Full fee: $550 incl. GST

Alumni discounted fees

10% discount for Monash staff / Monash alumni / Alfred staff / VHA members

Learning Outcome:

  • This one-day course will provide delegates with practical guidance on selecting the appropriate PROM, their use and interpretation in a CQR setting.
  • By the end of the course delegates will be equipped with a practical understanding of the key concept around what PROMs are, what they measure and why use them. They will also gain greater insight into the different types available, issues of reliability and choosing the appropriate PROM for the study.
  • Such course has not been offered yet, and is likely that there will reputational benefits to the Department, since the Department hosts more than 30 registries, positioning the Department as a PROMs for clinical registries education leader.
  • High attendance is expected from Victoria and interstate. For those who are not able to join face-to-face, they will be able to participate online, via Zoom.
  • The course will be evaluated based on student evaluation/feedback. If successful, this course will be offered at least once a year. If course is planned for more than one offering then evaluation could also be based on ongoing demand.