Current recruitment study details

Managing sleep disturbance and fatigue following acquired brain injury

This study is interested in comparing cognitive behavioural therapy and health education therapy in treating fatigue and sleep problems after traumatic brain injury and stroke. Participants will receive 8 one-on-one sessions with a
neuropsychologist in either cognitive behavioural therapy or health education therapy. Participants will be asked to complete research questionnaires to monitor symptoms through the course of the study. This study can be completed in person (Melbourne) or via tele-health (Australia-wide).

Recruitment for this study will continue until: 2022

Inclusion Criteria

  • History of  traumatic brain injury or stroke
  • Aged between 16 –  70
  • Clinically significant  symptoms of fatigue and/or poor sleep

Exclusion Criteria

  • Insufficient  understanding of English or severe communication deficits
  • Progressive neurological condition (e.g. dementia, brain tumour)
  • Untreated sleep apnoea (will be screened at initial assessment)
  • Use of medication for sleep/fatigue
  • Current severe psychiatric symptoms
  • Current alcohol or drug misuse

Location: Epworth Richmond, Monash Psychology Centre (Notting Hill) or tele-health
Contact: Lucy Ymer (Study Coordinator)
Phone:  03 9426 8923

Longitudinal head injury study – Influence of cultural backgrounds

Within a multicultural society, people from different cultural backgrounds often have different beliefs and practices with regard to illness and injury. Little is known about the experiences of people from different cultural backgrounds following traumatic brain injury. This study will aim to obtain a better understanding of the ways in which cultural beliefs influence rehabilitation and outcomes following traumatic brain injury. By obtaining this information, health professionals can provide the most appropriate care to a culturally diverse patient population and their families.

Participation will require approximately one hour of your time. You will be asked to complete a series of questionnaires, covering demographics, preferred language, and views regarding injury and recovery and assessing your English language proficiency. You will also complete a measure of your motivation and attitudes toward rehabilitation and rehabilitation therapists, a measure of your ability to carry out day to day activities (e.g., housework) and your employment status, and a measure of physical, social and occupational functioning. In addition, we will also be obtaining information relating to your injury and your rehabilitation history from your medical files.

Recruitment is ongoing for this study.

Inclusion Criteria

  • Have sustained a traumatic brain injury
  • Born overseas (excluding UK, USA & NZ)
  • Non-English speaking background
  • Aged 18 or above

Exclusion Criteria

  • Patients who have had a previous TBI, or currently have a degenerative condition  including any form of dementia, Parkinson’s disease, Multiple Sclerosis and  brain tumour

Contact: Elinor Fraser 
Phone: 03 9426 8923

Health Literacy Following Traumatic Brain Injury (TBI) and Impact on Health-related Outcomes

Health literacy is the degree to which individuals are able to obtain and understand health information and services in order to make appropriate and informed health decisions. Research suggests that low health literacy is associated with poor health behaviours and reduced health outcomes (such as poor self-management of medications).

Given that those who sustain a TBI often experience cognitive impairment (e.g. difficulties with concentration and memory), the likelihood of low health literacy among persons with brain injuries may be even higher than the general population. However, levels of health literacy have not been examined within a TBI population, and it is not known how poor health literacy may impact health outcomes in this population.

This study requires participation of both individuals who have sustained a TBI, and individuals who do not have a history of head injury. Participation in the study involves: 1) A phone interview (30-40 minutes), and; 2) online survey (15-20 minutes).

Inclusion Criteria - Controls

  • ≥18 years of age
  • English language capacity to complete study measures
  • Sufficient cognitive capacity to consent to the study and complete study measures
  • Access to internet

Exclusion Criteria - Controls

  • Insufficient English language capacity
  • History of any TBI, concussion, loss of consciousness
  • Other neurological condition (e.g. epilepsy, Dementia).
  • Severe psychiatric condition (e.g. psychosis)
  • Chronic history of substance abuse (from which a query of ARBI may be made)
  • No access to internet
  • Visual impairment that render them unable to view computer screen
  • Completed cognitive testing within 12mths

Recruitment will continue until December 2021 

Contact: Amelia Hicks

Phone: 03 9426 8923


Cognitive behaviour therapy for sexuality disturbance after traumatic brain injury

Traumatic brain injury (TBI) often results in sexuality changes which can interfere with the person’s sexual satisfaction, self-esteem, body image, mood, social participation, relationship intimacy, and overall quality of life, for some years after the injury. This study aims to evaluate the effectiveness of a holistic cognitive behaviour therapy (CBT) program addressing sexuality difficulties in individuals with traumatic brain injury. Participants will receive 8 one-on-one therapy sessions with a clinical psychologist. Participants will be asked to complete research questionnaires throughout the course of the study. This study can be completed in person (Melbourne) or via telehealth (Australia-wide).

Recruitment is ongoing for this study.

Inclusion Criteria

  • History of traumatic brain injury
  • Sexuality difficulties resulting from TBI
  • Aged between 18–65

Exclusion Criteria

  • Presence of other neurological disorders (e.g., multiple sclerosis, dementia)
  • Severe psychiatric symptoms or substance abuse
  • Insufficient English language or cognitive capacity

Contact: Elinor Fraser (Study Coordinator)
Phone: 03 9426 8923

Understanding, preventing and treating cybercrime after acquired brain injury 

Cybercrime includes scams (being cheated or ripped off), identity theft and online bullying. Cyberscams are common and can be very upsetting. People with brain injury may be at more risk of being scammed and they may find it harder to get help. There are currently few training tools or information for people with brain injury to learn about scams and recover from being scammed. Together with people who have lived experience of brain injury, we are creating on online education program to help people with brain injury improve their ability to identify and avoid scams.

We are looking for people with brain injury who have experienced a scam to help us co-design this resource by taking part in up to 3 focus groups. A focus group is when a small group of people come together to discuss a new product. In the focus group, we will ask you for feedback on our online resource, for example, what you like or dislike about the online training we have created. The focus groups will be held in Notting Hill, Victoria and online using Zoom. There will be 2-6 people in each group. The groups are being held in April, May and June.

Recruitment is ongoing for this study

Inclusion Criteria

  • Have an acquired brain injury (e.g. traumatic brain injury, stroke)
  • Have experienced a scam
  • Are 18 years of age or older
  • Have sufficient cognitive capacity to understand a plain language explanatory statement, provide informed consent, and participate in up to 3 focus groups of approximately 1.5 hours each (with breaks)

Exclusion Criteria

  • Live outside of Australasia
  • Do not have a sufficient cognitive capacity to understand a plain language explanatory statement, provide informed consent, and participate in up to 3 focus groups of approximately 1.5 hours each (with breaks)

Contact: Kate Gould (Study Coordinator)
Phone: 0473 370 030