Reports

• A-GLIMMER FINAL REPORT
  30 June 2023 – This report summarises the project’s research findings and makes recommendations to the Australian Government about legislative protection against genetic discrimination.
• A-GLIMMER project interim stakeholder report
  5 August 2022 (PDF, 9.95MB)
• A-GLIMMER submission to Financial Services Council regarding its review of the life insurance and genetics moratorium
  5 August 2022 (PDF, 408KB)

Media

• Discriminatory rule enables life insurance providers to put ban on payouts over genetic testing
  Herald Sun, 29 May 2023
• How Australia is failing women at risk of breast cancer 10 years after Angelina Jolie's revelation
  The Daily Telegraph, 14 May 2023
• Protection for genetic test results urged
  The West Australian, 13 December 2022
• Patients forgo lifesaving genetic tests over insurance fears
  The Australian, 29 November 2022
• Australians need more protection against genetic discrimination: health experts
  The Conversation, 5 October 2021
• Meet Australia’s Brockovich, champ for the genetically discriminated
  The Australian Financial Review, 10 September 2021
• Genetic discrimination and the life insurance moratorium, with Jane Tiller
  MJA Podcasts 2021 Episode 3, 2 July 2021
• Genetic tests, assured – Is Australia doing enough to guard against genomic discrimination?
  Cosmos Magazine, 8 February 2021
• When should we tell people they have a risky gene?
  ABC Radio National, Health Report with Norman Swan, 9 November 2020

Publications

• Tiller J, Bakshi A, Dowling G, Keogh L, McInerney-Leo A, Barlow-Stewart K, Boughtwood T, Gleeson P, Delatycki MB, Winship I, Otlowski M, Lacaze P. Community concerns about genetic discrimination in life insurance persist in Australia: A survey of consumers offered genetic testing. European Journal of Human Genetics. 2023 May 11. doi: 10.1038/s41431-023-01373-1. Epub ahead of print.
• Tiller J, Lacaze P, Otlowski M. The Australian moratorium on genetics and life insurance: evaluating policy compared to Parliamentary recommendations regarding genetic discrimination. Public Health Research & Practice. 2022 Dec 13;32(4):3242235. doi: 10.17061/phrp3242235.
• Dowling G, Tiller J, McInerney-Leo A, Belcher A, Haining C, Barlow-Stewart K, Boughtwood T, Gleeson P, Delatycki MB, Winship I, Otlowski M, Jacobs C, Keogh L, Lacaze P. Health professionals' views and experiences of the Australian moratorium on genetic testing and life insurance: A qualitative study. European Journal of Human Genetics. 2022 Nov;30(11):1262-1268. doi: 10.1038/s41431-022-01150-6.
• Tiller JM, Keogh LA, McInerney-Leo AM, Belcher A, Barlow-Stewart K, Boughtwood T, Gleeson P, Dowling G, Prince A, Bombard Y, Joly Y, Delatycki M, Winship IM, Otlowski M, Lacaze P. A step forward, but still inadequate: Australian health professionals' views on the genetics and life insurance moratorium. Journal of Medical Genetics. 2022 Aug;59(8):817-826. doi: 10.1136/jmedgenet-2021-107989.
• Tiller J, McInerney-Leo A, Belcher A, Boughtwood T, Gleeson P, Delatycki M, Barlow-Stewart K, Winship I, Otlowski M, Keogh L, Lacaze P. Study protocol: the Australian genetics and life insurance moratorium-monitoring the effectiveness and response (A-GLIMMER) project. BMC Medical Ethics. 2021 May 21;22(1):63. doi: 10.1186/s12910-021-00634-2.
• Tiller J, Winship I, Otlowski MF, Lacaze PA. Monitoring the genetic testing and life insurance moratorium in Australia: a national research project. Medical Journal of Australia. 2021 Mar;214(4):157-159.e1. doi: 10.5694/mja2.50922.

Awards

• Jane Tiller: 2022 Victorian Disability Award for Excellence in promoting health, housing and wellbeing
• Jane Tiller: 2021 MIME Women in STEMM Student Leader Award
• Jane Tiller: 2021 Young Tall Poppy Science Award