Contact us

IMG_0969-smlGet in contact with the research group closest
to you and join the fight to cure FA.

Monash University

Monash University, Melbourne, Australia
Principal Investigators: Nellie Georgiou-Karistianis, PhD, Ian Harding, PhD, Louise Corben, PhD, Martin Delatycki, MD, PhD
Study Coordinator: Karen Harris, PhD
Email: Karen.Harris1@monash.edu
Phone: +61 3 9905 3487

University of Florida

University of Florida, Gainesville, USA
Principal Investigators: Sub H Subramony, MD, Thomas Mareci, PhD, Manuela Corti, PhD
Study Coordinator: Samantha Norman
Email: Samantha.Norman@peds.ufl.edu
Phone: (352) 273-8218

University of Minnesota

University of Minnesota, Minneapolis, USA
Principal Investigators: Pierre-Gilles Henry, PhD, Christophe Lenglet, PhD
Study Coordinator: Diane Hutter
Email: hutte019@umn.edu
Phone: (612) 625-2350

Children’s Hospital of Philadelphia

Children’s Hospital of Philadelphia, Philadelphia, USA
Principal Investigators: William Gaetz, PhD, Timothy PL Roberts, PhD, David Lynch, MD, PhD
Study Coordinator: Leah Gaetz
Email: GaetzL@chop.edu
Phone: (267) 275-6352

University of Campinas

University of Campinas, Campinas, Brazil
Principal Investigators: Marcondes França, MD, PhD, Thiago Rezende, PhD
Study Coordinator: Fernanda Bittar, PhD
Email: bittarfernanda1@gmail.com
Phone: +55 19 98128004

Aachen University

Aachen University, Aachen, Germany
Principal Investigators: Kathrin Reetz, MD, PhD, Jörg B. Schulz, MD, PhD, Sandro Romanzetti, PhD, Imis Dogan, PhD
Study Coordinator: Imis Dogan, PhD
Email: idogan@ukaachen.de
Phone: +49-241-80 80719