News highlights

TRACK-FA Newsletter

• Issue 1 - July 2022 (PDF, 1.79 MB)
• Issue 2 - December 2022 (PDF, 1.14 MB)
• Issue 3 - August 2023 (PDF, 1.29 MB)
• Issue 4 - December 2023 (PDF, 0.48 MB)
• Issue 5 - August 2024 (PDF, 0.88 MB)
• Issue 6 - December 2024 (PDF, 1.14 MB)
• Issue 7 - December 2025 (PDF, 0.47 MB)

Community engagement

The new FA app enables community members from all over the world to connect and share news about FA. For more information, and to download the app please visit the website below.

https://www.thefaapp.org/

Press releases

• The TRACK-FA global neuroimaging consortium launch
• IXICO joins the TRACK-FA team
• CHOP joins the TRACK-FA team

TRACK-FA Study in the media

• Montreal researchers study rare genetic disease Friedreich's ataxia
• Rare disease research at the University of Minnesota holds global promise

Data sharing

TRACK-FA is committed to sharing data with the research community at the conclusion of the study. Information about data access will be detailed here as it becomes available.

TRACK-FA Neuroimaging Consortium publications

March, 2025
Georgiou‐Karistianis, N., Corben, L. A., Lock, E. F., Bujalka, H., Adanyeguh, I., Corti, M., ... & Henry, P. G. (2025). Neuroimaging Biomarkers for Friedreich Ataxia: A Cross‐Sectional Analysis of the TRACK‐FA Study. Annals of Neurology. https://doi.org/10.1002/ana.27237

November, 2022
The TRACK-FA Neuroimaging Consortium has published its first scientific article A natural history study to track brain and spinal cord changes in individuals with Friedreich’s ataxia: TRACK-FA study protocol.

Citation: Georgiou-Karistianis N, Corben LA, Reetz K, Adanyeguh IM, Corti M, Deelchand DK, et al. (2022) A natural history study to track brain and spinal cord changes in individuals with Friedreich’s ataxia: TRACK-FA study protocol. PLoS ONE 17(11): e0269649. https://doi.org/10.1371/journal.pone.0269649