Get involved

We invite everyone with an interest to participate in the consortium through several avenues.

Consumer Advisory Group

We are looking for consumers, patients or caregivers, who have been diagnosed with autoimmune encephalitis or other neuroinflammatory conditions. We want to hear your experience of the disease so we can better direct our research to focus on the needs of the patients and their carers to improve their quality of life with AE.

We also want to enhance the way that we communicate our research with patients, leading to increased participation (recruitment in studies) by improving patient information forms and dissemination of research findings through provision of seminars for patient and caregiver groups.

If you would be interested in joining the group and learning more about it, please contact us on -NeuroimmunologyResearch@monash.edu

Participate in research

Research is a large focus of our consortium and we are currently actively recruiting individuals that meet diagnostic criteria. We are looking for consumers, patients or caregivers, who have been diagnosed with autoimmune encephalitis or other neuroinflammatory conditions. We want to hear your experience of the disease so we can better direct our research to focus on the needs of the patients and their carers to improve their quality of life with AE.

We also want to enhance the way that we communicate our research with patients, leading to increased participation (recruitment in studies) by improving patient information forms and dissemination of research findings through provision of seminars for patient and caregiver groups.

Please reach out by email - NeuroimmunologyResearch@monash.edu

Useful links

Funding