Research

Data Access Request Form

Researchers wishing to access de-identified data from the PCOR-Vic registry will be required to complete a Data Access Form (DOCX, 0.31 MB) and be accompanied by relevant ethics committee certification. For questions relating to the Data Access Policy please contact us at PCOR-Vic@monash.edu.

In general, requests from contributing clinicians, prostate cancer clinic staff and academic organisations will be fulfilled without charge. Requests from other bodies will be considered on a case-by-case basis by the PCOR-Vic Steering Committee and may be subject to a processing fee.

The data obtained from PCOR-Vic is used to conduct valuable research, which we hope will contribute to improvements in quality of care and outcomes for men diagnosed with prostate cancer. PCOR-Vic’s publications are listed below:

Reports

Sampurno F & Evans SM (eds) for the Victorian Prostate Cancer Clinical Registry Steering Commitee. Victorian Prostate Cancer Clinical Registry – Five Year Report (PDF, 12.33 MB). Monash University (2015).

Media

Prostate cancer management has structural weakness that may hit thousands of men.
Australian Financial Review, 29 May 2018.

Publications

2022

Gondoputro W, Thompson J, Evans M, Bolton D, Frydenberg M, Murphy DG, Haynes AM, Agrawal S, Stricker P, Papa N. How Does Age Affect Urinary Continence following Robot-Assisted Radical Prostatectomy? A Prospective Multi-Institutional Study Using Independently Collected, Validated Questionnaires. J Urol. 2022 May;207(5):1048-1056. doi: 10.1097/JU.0000000000002391. Epub 2022 Jan 3.

Koo K, Papa N, Evans M, Jefford M, IJzerman M, White V, Evans SM, Ristevski E, Emery J, Millar J. Mapping disadvantage: identifying inequities in functional outcomes for prostate cancer survivors based on geography. BMC Cancer. 2022 Mar 17;22(1):283. doi: 10.1186/s12885-022-09389-4.

Papa N, Bensley JG, Hall K, Evans M, Millar JL. Quantifying the effect email reminders have on patient reported outcome measure returns in a large prostate cancer registry. J Patient Rep Outcomes. 2022 Mar 7;6(1):19. doi: 10.1186/s41687-022-00426-1.

Rechtman M, Forbes A, Millar JL, Evans M, Dodds L, Murphy DG, Evans SM. Comparison of urinary and sexual patient-reported outcomes between open radical prostatectomy and robot-assisted radical prostatectomy: a propensity score matched, population-based study in Victoria. BMC Urol. 2022 Feb 7;22(1):18. doi: 10.1186/s12894-022-00966-0.

Shemesh B, Opie J, Tsiamis E, Ayton D, Satasivam P, Wilton P, Gough K, Lewis K, O'Brien C, Shub M, Pomery A, Mac Manus C, Millar J, Evans S. Codesigning a patient support portal with health professionals and men with prostate cancer: An action research study. Health Expect. 2022 Apr 11. doi: 10.1111/hex.13444. Epub ahead of print.

2021

Azad AA, Tran B, Davis ID, Parente P, Evans M, Wong S, Brown S, Evans S, Millar J, Murphy DG, Papa N. Predictors of real-world utilisation of docetaxel combined with androgen deprivation therapy in metastatic hormone-sensitive prostate cancer. Intern Med J. 2021 Mar 12. doi: 10.1111/imj.15288. Epub ahead of print.

Bensley JG, Dhillon HM, Evans SM, Evans M, Bolton D, Davis ID, Dodds L, Frydenberg M, Kearns P, Lawrentschuk N, Murphy DG, Millar JL, Papa N. Self-reported lack of energy or feeling depressed 12 months after treatment in men diagnosed with prostate cancer within a population-based registry. Psychooncology. 2022 Mar;31(3):496-503. doi: 10.1002/pon.5833. Epub 2021 Oct 8.

Qu LG, Jack G, Perera M, Evans M, Evans S, Bolton D, Papa N. Impact of delay from transperineal biopsy to radical prostatectomy upon objective measures of cancer control. Asian J Urol. 2022 Apr;9(2):170-176. doi: 10.1016/j.ajur.2021.08.008. Epub 2021 Sep 6.

Papa N, Perera M, Murphy DG, Lawrentschuk N, Evans M, Millar JL, Bolton D. Patterns of primary staging for newly diagnosed prostate cancer in the era of prostate specific membrane antigen positron emission tomography: A population-based analysis. J Med Imaging Radiat Oncol. 2021 Oct;65(6):649-654. doi: 10.1111/1754-9485.13162. Epub 2021 Mar 5.

Wah W, Ahern S, Evans S, Millar J, Evans M, Earnest A. Geospatial and temporal variation of prostate cancer incidence. Public Health. 2021 Jan;190:7-15. doi: 10.1016/j.puhe.2020.10.032. Epub 2020 Dec 13.

Wah W, Papa N, Evans M, Ahern S, Earnest A. A multi-level spatio-temporal analysis on prostate cancer outcomes. Cancer Epidemiol. 2021 Jun;72:101939. doi: 10.1016/j.canep.2021.101939. Epub 2021 Apr 13.

2020

Ettridge K, Wright K, Smith D, Chambers S, Corsini N, Evans S, Moretti K, Roder D, Scuffham P, Miller C. Measuring psychosocial outcomes of men living with prostate cancer: feasibility of regular assessment of patient-reported outcomes. Eur J Cancer Care (Engl). 2021 Jul;30(4):e13393. doi: 10.1111/ecc.13393. Epub 2020 Dec 26.

Sheriffdeen A, Millar JL, Martin C, Evans M, Tikellis G, Evans SM. (Dis)concordance of comorbidity data and cancer status across administrative datasets, medical charts, and self-reports. BMC Health Serv Res. 2020 Sep 11;20(1):858. doi: 10.1186/s12913-020-05713-5.

2019

Earnest A, Evans SM, Sampurno F, Millar J. Forecasting annual incidence and mortality rate for prostate cancer in Australia until 2022 using autoregressive integrated moving average (ARIMA) models. BMJ Open. 2019 Aug 19;9(8):e031331. doi: 10.1136/bmjopen-2019-031331.

Hoque DME, Earnest A, Ruseckaite R, Lorgelly P, Sampurno F, Evans M, Evans SM. A randomised controlled trial comparing completeness of responses of three methods of collecting patient-reported outcome measures in men diagnosed with prostate cancer. Qual Life Res. 2019 Mar;28(3):687-694. doi: 10.1007/s11136-018-2061-7. Epub 2018 Nov 26.

Kannan A, Kirkman M, Ruseckaite R, Evans SM. Prostate cancer awareness, case-finding, and early diagnosis: Interviews with undiagnosed men in Australia. PLoS One. 2019 Mar 7;14(3):e0211539. doi: 10.1371/journal.pone.0211539.

Ong WL, Evans SM, Evans M, Tacey M, Dodds L, Kearns P, Milne RL, Foroudi F, Millar J. Trends in Conservative Management for Low-risk Prostate Cancer in a Population-based Cohort of Australian Men Diagnosed Between 2009 and 2016. Eur Urol Oncol. 2021 Apr;4(2):319-322. doi: 10.1016/j.euo.2019.04.006. Epub 2019 May 6.

2018

Beckmann K, O'Callaghan M, Vincent A, Roder D, Millar J, Evans S, McNeil J, Moretti K. Australian validation of the Cancer of the Prostate Risk Assessment Post-Surgical score to predict biochemical recurrence after radical prostatectomy. ANZ J Surg. 2018 Mar;88(3):E183-E188. doi: 10.1111/ans.13954. Epub 2017 May 4.

Ettridge KA, Bowden JA, Chambers SK, Smith DP, Murphy M, Evans SM, Roder D, Miller CL. "Prostate cancer is far more hidden…": Perceptions of stigma, social isolation and help-seeking among men with prostate cancer. Eur J Cancer Care (Engl). 2018 Mar;27(2):e12790. doi: 10.1111/ecc.12790. Epub 2017 Nov 7.

Evans MA, Millar JL, Earnest A, Frydenberg M, Davis ID, Murphy DG, Kearns PA, Evans SM. Active surveillance of men with low risk prostate cancer: evidence from the Prostate Cancer Outcomes Registry-Victoria. Med J Aust. 2018 Jun 4;208(10):439-443. doi: 10.5694/mja17.00559. Epub 2018 May 28.

Evans SM, Murphy DG, Davis ID, Sengupta S, Borzeshi EZ, Sampurno F, Millar JL. Interpolation to define clinical tumor stage in prostate cancer using clinical description of digital rectal examination. Asia Pac J Clin Oncol. 2018 Oct;14(5):e412-e419. doi: 10.1111/ajco.12875. Epub 2018 Apr 27.

Evans SM, Zalcberg JR, Scarborough R. Potential solutions to improve the governance of multicentre health services research. Med J Aust. 2018 Aug 20;209(4):187. doi: 10.5694/mja18.00325.

Ong WL, Evans SM, Millar JL. Under-utilisation of high-dose-rate brachytherapy boost in men with intermediate-high risk prostate cancer treated with external beam radiotherapy. J Med Imaging Radiat Oncol. 2018 Apr;62(2):256-261. doi: 10.1111/1754-9485.12699. Epub 2017 Dec 22.

Tsiamis E, Millar J, Baxi S, Borg M, De Ieso P, Elsaleh H, Foroudi F, Higgs B, Holt T, Martin J, Moretti K, Pryor D, Skala M, Evans S. Development of quality indicators to monitor radiotherapy care for men with prostate cancer: A modified Delphi method. Radiother Oncol. 2018 Aug;128(2):308-314. doi: 10.1016/j.radonc.2018.04.017. Epub 2018 May 9.

Wang LL, Begashaw K, Evans M, Earnest A, Evans SM, Millar JL, Murphy DG, Moon D. Patterns of care and outcomes for men diagnosed with prostate cancer in Victoria: an update. ANZ J Surg. 2018 Oct;88(10):1037-1042. doi: 10.1111/ans.14722. Epub 2018 Jul 25.

2017

Ahern S, Hopper I, Evans SM. Clinical quality registries for clinician-level reporting: strengths and limitations. Med J Aust. 2017 Jun 5;206(10):427-429. doi: 10.5694/mja16.00659.

Beckmann KR, O'Callaghan ME, Ruseckaite R, Kinnear N, Miller C, Evans S, Roder DM, Moretti K; South Australian Prostate Cancer Clinical Outcomes Collaborative. Prostate cancer outcomes for men who present with symptoms at diagnosis. BJU Int. 2017 Jun;119(6):862-871. doi: 10.1111/bju.13622. Epub 2016 Sep 3.

Campbell JM, O'Callaghan ME, Raymond E, Vincent AD, Beckmann KR, Roder D, Evans S, McNeil J, Millar J, Zalcberg J, Borg M, Moretti KL. Tools for Predicting Clinical and Patient-reported Outcomes in Prostate Cancer Patients Undergoing Androgen Deprivation Therapy: A Systematic Review of Prognostic Accuracy and Validity. Clin Genitourin Cancer. 2017 Dec;15(6):629-634.e8. doi: 10.1016/j.clgc.2017.03.011. Epub 2017 Mar 30.

Hoque DME, Kumari V, Hoque M, Ruseckaite R, Romero L, Evans SM. Impact of clinical registries on quality of patient care and clinical outcomes: A systematic review. PLoS One. 2017 Sep 8;12(9):e0183667. doi: 10.1371/journal.pone.0183667.

Hoque DM, Sampurno F, Ruseckaite R, Lorgelly P, Evans SM. Study protocol of an equivalence randomized controlled trial to evaluate the effectiveness of three different approaches to collecting Patient Reported Outcome Measures (PROMs) data using the Prostate Cancer Outcomes Registry-Victoria (PCOR-VIC). BMC Health Serv Res. 2017 Jan 23;17(1):75. doi: 10.1186/s12913-017-1981-1.

Ilic D, Evans SM, Allan CA, Jung JH, Murphy D, Frydenberg M. Laparoscopic and robotic-assisted versus open radical prostatectomy for the treatment of localised prostate cancer. Cochrane Database Syst Rev. 2017 Sep 12;9(9):CD009625. doi: 10.1002/14651858.CD009625.pub2.

Kirkman M, Young K, Evans S, Millar J, Fisher J, Mazza D, Ruseckaite R. Men's perceptions of prostate cancer diagnosis and care: insights from qualitative interviews in Victoria, Australia. BMC Cancer. 2017 Oct 27;17(1):704. doi: 10.1186/s12885-017-3699-1.

Ong WL, Foroudi F, Evans S, Millar J. Large institutional variations in use of androgen deprivation therapy with definitive radiotherapy in a population-based cohort of men with intermediate- and high-risk prostate cancer. BJU Int. 2017 Nov;120 Suppl 3:35-42. doi: 10.1111/bju.13969. Epub 2017 Aug 19.

Raymond E, O'Callaghan ME, Campbell J, Vincent AD, Beckmann K, Roder D, Evans S, McNeil J, Millar J, Zalcberg J, Borg M, Moretti K. An appraisal of analytical tools used in predicting clinical outcomes following radiation therapy treatment of men with prostate cancer: a systematic review. Radiat Oncol. 2017 Mar 21;12(1):56. doi: 10.1186/s13014-017-0786-z.

Sampurno F, Earnest A, Millar J, Frydenberg M, Murphy D, Delprado W, Evans S. Population-based study of grade progression in patients who harboured Gleason 3 + 3. World J Urol. 2017 Nov;35(11):1689-1699. doi: 10.1007/s00345-017-2047-z. Epub 2017 May 12.

2016

Daniels CP, Millar JL, Spelman T, Sengupta S, Evans SM. Predictors and rate of adjuvant radiation therapy following radical prostatectomy: A report from the Prostate Cancer Registry. J Med Imaging Radiat Oncol. 2016 Apr;60(2):247-54. doi: 10.1111/1754-9485.12407. Epub 2015 Nov 9.

Evans SM, Nag N, Roder D, Brooks A, Millar JL, Moretti KL, Pryor D, Skala M, McNeil JJ. Development of an International Prostate Cancer Outcomes Registry. BJU Int. 2016 Apr;117 Suppl 4:60-7. doi: 10.1111/bju.13258. Epub 2016 Feb 15.

Evans SM, Patabendi Bandarage V, Kronborg C, Earnest A, Millar J, Clouston D. Gleason group concordance between biopsy and radical prostatectomy specimens: A cohort study from Prostate Cancer Outcome Registry - Victoria. Prostate Int. 2016 Dec;4(4):145-151. doi: 10.1016/j.prnil.2016.07.004. Epub 2016 Aug 3.

Evans SM, Zalcberg JR. Enough is enough … a call to action to improve ethical and governance review processes in Australia. Intern Med J. 2016 Dec;46(12):1362-1364. doi: 10.1111/imj.13289.

Gordon L, Tuffaha H, James R, Scuffham P. Economic modelling of healthcare services for prostate cancer. Prostate Cancer Foundation Australia. 2016. ISBN: 978-0-9945028-3-4.

Hoque DME, Kumari V, Hoque M, Ruseckaite R, Romero L, Evans SM. Impact of clinical registries on quality of patient care and clinical outcomes: A systematic review. PLoS One. 2017 Sep 8;12(9):e0183667. doi: 10.1371/journal.pone.0183667.

Nag N, Millar J, Davis ID, Costello S, Duthie JB, Mark S, Delprado W, Smith D, Pryor D, Galvin D, Sullivan F, Murphy ÁC, Roder D, Elsaleh H, Currow D, White C, Skala M, Moretti KL, Walker T, De Ieso P, Brooks A, Heathcote P, Frydenberg M, Thavaseelan J, Evans SM. Development of Indicators to Assess Quality of Care for Prostate Cancer. Eur Urol Focus. 2018 Jan;4(1):57-63. doi: 10.1016/j.euf.2016.01.016. Epub 2016 Feb 20.

Ong WL, Evans SM, Spelman T, Kearns PA, Murphy DG, Millar JL. Comparison of oncological and health-related quality of life outcomes between open and robot-assisted radical prostatectomy for localised prostate cancer - findings from the population-based Victorian Prostate Cancer Registry. BJU Int. 2016 Oct;118(4):563-9. doi: 10.1111/bju.13380. Epub 2015 Dec 19.

Patabendi Bandarage VR, Billah B, Millar JL, Evans S. Prospective evaluation of patient-reported quality of life outcomes after external beam radiation treatment for prostate cancer in Victoria: A cohort study by the Victorian Prostate Cancer Registry. J Med Imaging Radiat Oncol. 2016 Jun;60(3):420-7. doi: 10.1111/1754-9485.12433. Epub 2016 Jan 13.

Ruseckaite R, Beckmann K, O'Callaghan M, Roder D, Moretti K, Zalcberg J, Millar J, Evans S. Development of South Australian-Victorian Prostate Cancer Health Outcomes Research Dataset. BMC Res Notes. 2016 Jan 22;9:37. doi: 10.1186/s13104-016-1855-3.

Ruseckaite R, Beckmann K, O'Callaghan M, Roder D, Moretti K, Millar J, Evans S. A retrospective analysis of Victorian and South Australian clinical registries for prostate cancer: trends in clinical presentation and management of the disease. BMC Cancer. 2016 Aug 5;16:607. doi: 10.1186/s12885-016-2655-9.

Ruseckaite R, Sampurno F, Millar J, Frydenberg M, Evans S. Diagnostic and treatment factors associated with poor survival from prostate cancer are differentially distributed between regional and metropolitan Victoria, Australia. BMC Urol. 2016 Sep 2;16(1):54. doi: 10.1186/s12894-016-0172-4.

Ruseckaite R, Evans S, Millar J, Holton S, Mazza D, Fisher J, Kirkman M. GPs’ Insights into Prostate Cancer Diagnosis and Care in Regional Victoria, Australia. The Qualitative Report. 2016 Dec 22;21(12):2365-2379. doi: 10.46743/2160-3715/2016.2540.

Sampurno F, Earnest A, Kumari PB, Millar JL, Davis ID, Murphy DG, Frydenberg M, Kearns PA, Evans SM. Quality of care achievements of the Prostate Cancer Outcomes Registry-Victoria. Med J Aust. 2016 May 2;204(8):319. doi: 10.5694/mja15.01041.

Sampurno F, Ruseckaite R, Millar JL, Evans SM. Comparison of Patient-Reported Quality-of-Life and Complications in Men With Prostate Cancer, Between Two Modes of Administration. Clin Genitourin Cancer. 2016 Aug;14(4):284-9. doi: 10.1016/j.clgc.2015.12.016. Epub 2015 Dec 22.

2015

Evans SM, Lin D, Ilic D, Millar J, Murphy D, Dean J. Monitoring Quality of Care in Men Diagnosed with Prostate Cancer: Developing Consensus Quality Indicators Using Modified-Delphi Methodology. J Epidemiol Prev Med. 2015 Oct;1(2):109. doi: 10.19104/jepm.2015.109.

Roth H, Millar JL, Cheng AC, Byrne A, Evans S, Grummet J. The state of TRUS biopsy sepsis: readmissions to Victorian hospitals with TRUS biopsy-related infection over 5 years. BJU Int. 2015 Oct;116 Suppl 3:49-53. doi: 10.1111/bju.13209.

Weerakoon M, Papa N, Lawrentschuk N, Evans S, Millar J, Frydenberg M, Bolton D, Murphy DG. The current use of active surveillance in an Australian cohort of men: a pattern of care analysis from the Victorian Prostate Cancer Registry. BJU Int. 2015 Apr;115 Suppl 5:50-6. doi: 10.1111/bju.13049.

Wilkins S, Best RL, Evans SM. Need for a roadmap for development of a coordinated national registry programme. Intern Med J. 2015 Nov;45(11):1189-92. doi: 10.1111/imj.12898.

2014

Evans SM, Millar JL, Frydenberg M, Murphy DG, Davis ID, Spelman T, Bolton DM, Giles GG, Dean J, Costello AJ, Frauman AG, Kearns PA, Day L, Daniels C, McNeill JJ. Positive surgical margins: rate, contributing factors and impact on further treatment: findings from the Prostate Cancer Registry. BJU Int. 2014 Nov;114(5):680-90. doi: 10.1111/bju.12509. Epub 2014 Feb 14.

Weerakoon M, Evans S, Millar JL, Murphy DG, Frydenberg M, Bolton D, Lawrentschuk N. Do active surveillance patients in Victoria, Australia, meet the criteria for PRIAS? Abstract of the Urological Society of Australia and New Zealand, 67th Annual Scientific Meeting, Brisbane, Australia, 16-19 March 2014. BJU Int. 2014 Mar;113 Suppl 4:1-142. doi: 10.1111/bju.12618.

Weerakoon M, Evans S, Millar JL, Lawrentschuk N, Frydenberg M, Bolton D, Murphy DG. Current use of active surveillance in Australia – a patterns of care analysis from the Prostate Cancer Registry Abstract of the Urological Society of Australia and New Zealand, 67th Annual Scientific Meeting, Brisbane, Australia, 16-19 March 2014. BJU Int. 2014 Mar;113 Suppl 4:1-142. doi: 10.1111/bju.12618.

2013

Evans SM, Millar JL, Davis ID, Murphy DG, Bolton DM, Giles GG, Frydenberg M, Andrianopoulos N, Wood JM, Frauman AG, Costello AJ, McNeil JJ. Patterns of care for men diagnosed with prostate cancer in Victoria from 2008 to 2011. Med J Aust. 2013 Jun 3;198(10):540-5. doi: 10.5694/mja12.11241.

Evans SM, Millar JL, Wood JM, Davis ID, Bolton D, Giles GG, Frydenberg M, Frauman A, Costello A, McNeil JJ. The Prostate Cancer Registry: monitoring patterns and quality of care for men diagnosed with prostate cancer. BJU Int. 2013 Apr;111(4 Pt B):E158-66. doi: 10.1111/j.1464-410X.2012.11530.x. Epub 2012 Nov 1.

Millar J on behalf of the PCR Steering Committee. Quality of life outcomes for prostate cancer treatment in Australia. 2013 Genitourinary Cancers Symposium (ASCO, ASTRO and SUO). 14-16 February 2013, Orlando, Florida, USA. [Conference presentation]

Murphy DG, Evans SM, Millar JL, Davis ID, Bolton D, Giles GG, Frydenberg M, Andrianopoulos N, Wood JM, Frauman AG, Costello A, McNeil JJ. Importance of a prostate cancer registry for describing changing patterns of care. Abstract of the Urological Society of Australia and New Zealand 66th Annual Scientific Meeting. Melbourne, Australia. 13-16 April 2013. BJU Int. 2013 Apr;111 Suppl 1:13-126. doi: 10.1111/bju.12069.

2012

Evans SM on behalf of the PCR Steering Committee. The Prostate Cancer Registry: an update on progress and achievements. Southern Metropolitan Integrated Cancer Services (SMICS) Genito-Urinary Tumour Group Meeting, 6 August 2012, Melbourne. [Conference presentation]

Evans SM & Brennan A. How to Build an Effective Clinical Registry Consultative Council for Human Research Ethics forum. 24 August 2012, Melbourne. [Conference presentation]

Frydenberg M on behalf of the PCR Steering Committee. Contemporary patterns of disease, patients and management characteristics from the Victorian PCR. ANZUP Annual Scientific Meeting, 15-17 July 2012, Sydney. [Conference presentation]

Ilic D, Evans S, Murphy D, Frydenberg M. Laparoscopic versus open prostatectomy for the treatment of localised prostate cancer. (Protocol). Cochrane Database of Systematic Reviews. 2012;(2). doi: 10.1002/14651858.CD009625.

Kiven L, Evans SM, Frydenberg M, Murphy D, Millar J on behalf of the PCR Steering Committee. Contemporary outcomes of radical prostatectomy in a population based registry. 13th Australasian Prostate Cancer Conference, 1 August 2012, Melbourne. [Conference presentation]

Murphy D on behalf of the PCR Steering Committee. Enormous change in patterns of care in Victoria: data from the prostate cancer clinical registry. 13th Australasian Prostate Cancer Conference, 1 August 2012, Melbourne. [Conference presentation]

2011

Board N, Evans SM, Cameron PA, McNeil JJ, Johnson N. National reporting arrangements for clinical quality registries. Health Informatics Society of Australasia (HISA) Data Governance Conference, Melbourne, 19-20 May 2011. [Conference presentation]

Evans SM, Scott IA, Johnson NP, Cameron PA, McNeil JJ. Development of clinical-quality registries in Australia: the way forward. Med J Aust. 2011 Apr 4;194(7):360-3. doi: 10.5694/j.1326-5377.2011.tb03007.x.

Evans SM, Millar J, McNeil. Audit and Registry. 20th Annual Scientific Meeting of the Australasian Health Research Data Managers Association, 17-18 March 2011. [Conference presentation]

Evans SM, Cameron PA, Reid C. Data governance at the coalface. Health Informatics Society of Australasia (HISA) Data Governance Conference, Melbourne, 19-20 May 2011. [Conference presentation]

Evans SM, Millar J, McNeil JJ. Who should have access to identifiable patient and clinician-level data in clinical registries? Health Informatics Society of Australasia (HISA) Data Governance Conference, Melbourne, 19-20 May 2011. [Conference presentation]

Evans SM, Millar J, Wood J, McNeil JJ. The importance of aligning registries monitoring quality and safety with nationally endorsed Operating Principles for Clinical Quality Registries. International Society for Quality (ISQua) 28th International Conference Hong Kong, 15-17 September 2011. [Conference presentation]

Millar J and Evans S on behalf of the Prostate Cancer Clinical Registry Steering Committee. Introducing the Prostate Cancer Clinical Quality Registry. Barwon South Western Regional Integrated Cancer Service Urology Multidisciplinary Meeting, 5 April 2011. [Conference presentation]

Millar J on behalf of the Prostate Cancer Steering Committee. The Prostate Cancer Registry: Contemporary Patterns of Prostate Cancer Presentation, Management and Outcomes in Victoria. 12th Australasian Prostate Cancer Conference, Melbourne, 1 August 2011. [Conference presentation]

Millar J on behalf of the PCR Steering Committee. Contemporary Patterns of Prostate Cancer Presentation, Management and Outcomes in Victoria. 12th Australasian Prostate Cancer Conference 2011. Melbourne, 3-5 August 2011. [Conference presentation]

Shub M on behalf of the PCR Steering Committee presentations to the National Support & Advocacy Committee of PCFA and the Vic/Tas Chapter Council of PCFA, 2011. [Conference presentations]

Shub M on behalf of the PCR Steering Committee presentations to the following prostate cancer support groups: Bayside Prostate Cancer Support Group, Prostate Heidelberg, Prostate Waverley, Melbourne and Penninsula Prostate and Partners Support Group, Ringwood Prostate Cancer Support Group, Bass Coast Prostate Cancer Support Group, Diamond Valley Prostate Cancer Support Group, 2011. [Conference presentations]

Wood J, Evans SM, Millar J et al. Development of a clinical registry to monitor quality of care for men diagnosed with prostate cancer. Cabrini Research, Monday 15 August 2011. [Conference presentation]

2010

Evans SM on behalf of the Prostate Cancer Clinical Registry Steering Committee. Pilot of a prostate cancer registry. 11th National Prostate Cancer Symposium, 11-13 August 2010. [Conference presentation]

Evans SM, Millar on behalf of the Prostate Cancer Clinical Registry Steering Committee. Updating clinicians on the prostate cancer registry. Monash Comprehensive Cancer Consortium Research Seminar, 14 April 2010. [Conference presentation]

McNeil JJ, Evans SM, Johnson NP, Cameron PA. Clinical-quality registries: their role in quality improvement. Med J Aust. 2010 Mar 1;192(5):244-5. doi: 10.5694/j.1326-5377.2010.tb03499.x.

Millar J and Evans SM on behalf of the Prostate Cancer Clinical Registry Steering Committee. Introducing the prostate cancer clinical registry. Cancer Clinical Outcomes Group (CCOG) Department of Human Services 15 April 2010, Melbourne. [Conference presentation]

Millar J on behalf of the Prostate Cancer Clinical Registry Steering Committee. The prostate cancer registry – developing useful data sources to guide quality improvement and practice change. Integrated Cancer Centres Symposium, 8-9 September 2010. [Conference presentation]

Millar J Evans SM on behalf of the Prostate Cancer Clinical Registry Steering Committee. Pilot of a Prostate Cancer Clinical Registry. Victorian Cooperative Oncology Group, 21 October 2010. Melbourne. [Conference presentation]