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Consumer involvement and engagement opportunities

Consumer involvement and engagement opportunities

Real change starts with real experiences.
Share your living experience and help create inclusive, relevant outcomes that make a genuine difference in people’s lives.

We are connecting community voices and researchers to help transform healthy ageing research

Healthy ageing research is stronger when it’s shaped by community voices and living experience. Subscribe to hear about opportunities to get involved and share your perspective.

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Current opportunities for community members to get involved:

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What do you think about AI and routine health data for dementia detection? View

We are seeking older adults (aged 60+) without a diagnosis of dementia or mild cognitive impairment to take part in a one-hour interview.

The purpose of this research opportunity is to understand public values, concerns, and ideas around AI and dementia detection.

Who is offering this: Peninsula Health

When this happens (dates/time): Now until July 30, 2027

Who can take part: People who are 18 years old and above

What you need to do: 1 x 60 min session

Where it takes place: Online or in-person (Ngarnga Centre, 2 Hastings Rd, Frankston, Victoria, 3199)

Support for taking part: Participants will receive a $50 gift voucher as a thank you for their time

Contact details for more information: Dr Alicia Lu, email: alicia.lu@monash.edu

About Dr Alicia Lu

Dr Alicia Lu is a geriatric medicine specialist and PhD researcher working to use artificial intelligence to better predict dementia in older people admitted to hospital. She is committed to making sure this work is safe, responsible, and truly helpful for older people, especially those living with dementia. To do this, she partners with people with lived experience, healthcare professionals, and experts in dementia, AI, and ethics, and conducts interviews to understand community perspectives.

Dr Lu was recently awarded a travelling scholarship from the Australian and New Zealand Society for Geriatric Medicine to visit leading centres such as Unity Health Toronto in Canada, where similar AI tools are being used in clinical care.

Would you like to share your clinical trial experience? View

We are inviting patients, carers and family members to join a 'Partnering with Consumers' Working Group. This group helps shape how clinical trials are planned, run and improved at Peninsula Health.

Members meet online once a month for about one hour. In these meetings, we share ideas, experiences and feedback to help make clinical trials safer, clearer and more positive for people taking part.

This work supports Peninsula Health’s commitment to improving clinical trials for patients, families and the community. It also aligns with a national framework that encourages hospitals to work closely with consumers when planning, designing and improving clinical trials.

The working group includes people with lived experience of clinical trials, alongside staff from clinical trials and consumer engagement teams. By working together, we aim to ensure clinical trials at Peninsula Health reflect what matters most to patients and families.

Who is offering this: Peninsula Health

When this happens (dates/time): Now until July 30, 2027

Who can take part: People who are 18 years old and above. Participants will need to have experience of clinical trials as either a patient, carer or family member

What you need to do: Meet online once a month for ~1 hour

Where it takes place: Online

Support for taking part: Heartfelt thanks!

Contact details for more information: Dr Kim Naude, email: knaude@phcn.vic.gov.au

Update of the 2016 Dementia Clinical Practice Guidelines & Principles of Care View

We invite you to register your interest to stay informed about the update of Australia’s Clinical Practice Guidelines and Principles of Care for People with Dementia, and to hear about future opportunities to be involved.

These guidelines are being updated by Monash University researchers, working with the Australian Government Department of Health, Disability and Ageing. This work helps make sure dementia care in Australia reflects the most up‑to‑date evidence and what matters to people living with dementia and their families.

A national group led by Monash University is guiding the update. The group includes people with lived experience of dementia, carers, clinicians, researchers and organisations involved in dementia care and support. Together, they are reviewing and updating the 2016 guidelines so they continue to support best practice in dementia risk reduction, diagnosis and care.

If you would like to receive updates or learn about ways to contribute, please register your interest using the link below.

Who is offering this: Monash University

When this happens (dates/time): Now until delivery of guidelines

Who can take part: People who are 18 years old and above

Where it takes place: Online

How to register interest: Visit website HERE and register to stay informed

Contact details for more information: email dementia.guidelines@monash.edu

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