Understanding needs, knowledge and perspectives of people with lung conditions and their caregivers regarding singing for breathing programs in Australia: A mixed methods study

Subject area of study: Singing for Breathing programs for people living withchronic Obstructive pulmonary disease (COPD), interstitial lung disease (ILD) and thoracic malignancy

Brief outline: We are seeking people with a diagnosis of chronic obstructive pulmonary disease (COPD), interstitial lung disease (ILD) or thoracic malignancy (e.g. lung cancer) and their informal caregivers living in Australia or New Zealand to participate in a research study, “Needs, Knowledge and Perspectives of Singing for Breathing Programs: A Mixed Methods Study”.

There is growing interest in group singing interventions for lung disease, known as Singing for Breathing programs, with research showing promise for improving symptom management and quality of life. Despite this, there is little consistency in the way programs are structured and delivered.

This study aims to understand needs, knowledge and perspectives of Singing for Breathing programs among people with lung disease and their informal caregivers. Further we seek to understand where Singing for Breathing programs may fit in the overall treatment of lung disease by understanding the experience of those living with lung disease and their caregivers. This study will include an online survey and short qualitative interviews.

The study has been approved by Monash University Human Research Ethics Committee (#47916)

Who is eligible to participate?

  • Persons diagnosed with chronic obstructive pulmonary respiratory disease (COPD), interstitial lung disease (ILD) or thoracic malignancy (e.g. lung cancer)
  • Person caring for someone diagnosed with chronic obstructive pulmonary disease (COPD), interstitial lung disease (ILD) or thoracic malignancy (e.g. lung cancer)

What does the study involve?

  • A short (10 - 15 minutes) online survey. Submit survey HERE and/or
  • A single interview via phone or videoconferencing (approx. 30-40 minutes), at a time that suits you
  • You will be asked questions relating to your engagement with music, current symptom management strategies and perspectives of group singing interventions for those with chronic respiratory disease

No prior knowledge or experience of singing for breathing programs required.

Explanatory statements

Department: Respiratory Research@Alfred
Recruitment start date:  Monday 30 June 2025
Recruitment end date:  Wednesday 31 December 2025
Contact person title: Ms
Contact person first name: Stefanie
Contact person last name: Zappino
Contact email: Stefanie.zappino@monash.edu
Ethics Committee Project Number: 47916
Do you have advertising approval?: Yes
Approved by: Monash University Human Research Ethics Committee