Aplastic Anaemia and other bone marrow failure syndromes Registry (AAR)

Academic Lead:Professor Erica Wood
Head, Transfusion Research Unit
Clinical Leads: Professor Frank Firkin, Haematology
Associate Professor Zoe McQuilten, Deputy Head, Transfusion Research Unit
Registry Contact: Vanessa Fox
Email: aar@monash.edu
Phone: 1800 811 326
Purpose / Aims:

The aims of the AAR are to:

  • better define the incidence, natural history and clinical outcome of aplastic anaemia
  • provide information on the range of therapeutic strategies being employed in the treatment of aplastic anaemia patients
  • explore factors influencing clinical outcomes to better define optimal management of aplastic anaemia
Population Captured: Adult and paediatric patients suffering from aplastic anaemia and other bone marrow failure disorders.
Outcomes Collected: Demographics, diagnosis, laboratory and clinical results, complications of disease and therapy, clinical outcomes; if death, cause of death.
Funding Source: Maddie Riewoldt’s Vision
Website:aaregistry.org.au