Monash Clinical Registries

Monitoring variation in healthcare is known to support best practice and improve quality of care. However, challenges exist in developing and accessing appropriate data sets on which to undertake clinical quality benchmarking. Clinical registries are increasingly recognised as credible, effective and feasible tools to measure variation and drive quality improvement at the national and jurisdictional health system levels.

The School of Public Health and Preventive Medicine has extensive experience in the establishment and maintenance of clinical registries. These registries collect an identical minimum data set from patients treated in multiple hospitals or clinics throughout the country. Consistency is ensured through the use of identical definitions and data collection procedures.

CANCER OUTCOMES REGISTRIES

Australian and New Zealand Thyroid Cancer Registry (ANZTCR)

Binational Colorectal Cancer Audit (BCCA)

National Gynae-Oncology Registry (NGOR)

Prostate Cancer Outcomes Registry Australia and New Zealand (PCOR-ANZ)

Prostate Cancer Outcomes Registry Victoria
(PCOR-Vic)

Upper Gastrointestinal Cancer Registry (UGICR)

Victorian Lung Cancer Registry (VLCR)
   

CARDIAC OUTCOMES REGISTRIES

Victorian Cardiac Outcomes Registry (VCOR)

Melbourne Interventional Group Registry (MIG)

ANZSCTS Cardiac Surgery Database Program
  

CLINICAL OUTCOMES DATA REPORTING AND RESEARCH

Australian Breast Device Registry (ABDR)

Australian Cystic Fibrosis Data Registry (ACFDR)

Australian Dementia Network (ADNeT) Registry

Australasian Pelvic Floor Procedure Registry (APFPR)

Australian Spine Registry (ASR)

MEDICAL OUTCOMES REGISTRIES

SURGICAL OUTCOMES REGISTRIES

Australian National Diabetes Audit (ANDA) / ANDA Longitudinal Register (ANDA-L)

Australian Rheumatology Association Database (ARAD)
 

Bariatric Surgery Registry (BSR)
 

TRANSFUSION AND BLOOD DISEASES OUTCOMES REGISTRIES

Myeloma and Related Diseases Registry (MRDR)

Asia Pacific Myeloma and Related Diseases Registry (APAC MRDR)

Myelodysplastic Syndromes Registry (MDSLink)

Lymphoma and Related Diseases Registry (LaRDR)

Australian New Zealand Massive Transfusion Registry
(ANZ-MTR)

Aplastic Anaemia Registry (AAR)

Haemoglobinopathy Registry (HbR)

Neonatal Alloimmune Thrombocytopenia (NAIT)

Thrombotic Thrombocytopenia
Purpura / Thrombotic Microangiopathies Registry (TTP/TMA)

Venous Thromboembolism Cohort Study (VTE)

TRAUMA AND EMERGENCY OUTCOMES REGISTRIES

Australian Trauma Registry (ATR)

Victorian State Trauma Registry (VSTR)

Saudi TraumA Registry (STAR)

Victorian Orthopaedic Trauma Outcomes Registry (VOTOR)

Burns Registry of Australia and New Zealand (BRANZ)

Aus-ROC Australian and New Zealand Out-of-Hospital Cardiac Arrest Epistry

EXCEL – The Australian and
New Zealand Extracorporeal Membrane
Oxygenation Registry