Asia Pacific Myeloma & Related Diseases Registry (APAC MRDR)

Academic Lead:Professor Andrew Spencer
Head, Malignant Haematology and Stem Cell Transplantation Service, Alfred Hospital
Clinical Lead: Professor Andrew Spencer
Head, Malignant Haematology and Stem Cell Transplantation Service, Alfred Hospital
Registry Contact: Naomi Aoki, Project Manager
Email: sphpm.apacmrdr@monash.edu
Phone: +61 3 9903 8270
Purpose / Aims: The Asia Pacific Myeloma & Related Diseases Registry (APAC MRDR) aims to:
  • monitor trends in practice, outcomes and survival
  • understand access to care
  • explore variation in practice, process and outcomes
  • benchmark outcomes nationally and internationally
  • explore factors that influence outcomes including survival and quality of life
  • act as a resource for clinical trials and further research
Population Captured: Patients ≥ 18 years in Asia-Pacific with a new diagnosis of myeloma, plasmacytoma, plasma cell leukaemia or monoclonal gammopathy of undetermined significance (MGUS).
Outcomes Collected: Primary outcome:
  • overall survival post-diagnosis in multiple myeloma which is assessed by review of hospital records and linkage with national death databases

Secondary outcome:

  • progression-free post-diagnosis in multiple myeloma which is assessed by review of hospital records and linkage with national death databases
Funding Source:Janssen-Cilag
Website:apacmrdr.org