Asia Pacific Myeloma & Related Diseases Registry (APAC MRDR)

Academic Lead:	Professor Erica Wood Head, Transfusion Research Unit
Clinical Lead:	Professor Andrew Spencer Head, Malignant Haematology and Stem Cell Transplantation Service, Alfred Hospital
Registry contact:	Laura Oliver, Research Officer Email: sphpm.apacmrdr@monash.edu Phone: +61 3 9903 8263
Purpose / aims:	APAC MRDR aims to: monitor trends in practice, outcomes and survival understand access to care explore variation in practice, process and outcomes benchmark outcomes nationally and internationally explore factors that influence outcomes including survival and quality of life act as a resource for clinical trials and further research
Population captured:	Patients ≥ 18 years in Asia-Pacific with a new diagnosis of myeloma, plasmacytoma, plasma cell leukaemia or monoclonal gammopathy of undetermined significance (MGUS).
Outcomes collected:	Primary outcome: overall survival post-diagnosis in multiple myeloma which is assessed by review of hospital records and linkage with national death databases Secondary outcome: progression-free survival post-diagnosis in multiple myeloma which is assessed by review of hospital records and linkage with national death databases Also: diagnoses, laboratory and clinical results, clinical management including haematopoietic stem cell transplantation, complications of disease and therapy, clinical outcomes; if death, cause of death.
Year established:	2018
Funding source:	Janssen-Cilag
Website:	apacmrdr.org