National Transfusion Dataset (NTD) incorporating the Australian and New Zealand Massive Transfusion Registry (ANZ-MTR)

Academic Lead: Professor Erica Wood
Head, Transfusion Research Unit
Clinical Lead:Professor Zoe McQuilten
Deputy Head, Transfusion Research Unit
Registry contact: Email: sphpm.ntd@monash.edu
Phone: 1800 811 326
Purpose / aims:

The NTD aims to address unmet transfusion data infrastructure needs by:

  • Strengthening Australia’s transfusion infrastructure by linking key institutional, regional and national datasets and developing a platform for registry-based transfusion trials and modelling; to
  • Describe who needs blood, and why, where and when blood is used, and transfusion costs and outcomes; and
  • Provide data to inform and strengthen national haemovigilance activities

The NTD will:

  1. Incorporate data on all transfusions, in all settings, including those in the setting of critical bleeding and massive transfusion.
  2. Expand transfusion data coverage by articulating / integrating prehospital transfusion data with hospital data and linking the dataset with registry transfusion data.
  3. Strengthen data quality.
  4. Improve access to transfusion data for stakeholders and researchers.
  5. Improve Australian transfusion research capacity and efficiency.
  6. Create new research opportunities (e.g. data for health economics analyses) to inform national transfusion policy and practice, improve blood utilization and patient management and outcomes.
Population captured: All patients (≥18 years old) transfused any type of blood product, all blood donors (≥18 years old), at participating health services or organisations.
Outcomes collected: Patient outcomes include in-hospital mortality and status at patient discharge. Long term outcomes are available through data linkages with death and other registries. Patient outcomes include in-hospital mortality and status at patient discharge. Long term outcomes are available through data linkages with death and other registries.
Funding sources: The NTD is funded by the Australian Research Data Commons (ARDC), the NHMRC Blood Synergy Research Program and the Medical Research Future Fund (MRFF).
Year established: 2011
Website:transfusiondataset.com