Australian Dementia Network (ADNeT) Registry

Academic Lead:Professor Susannah Ahern
Head, Clinical Outcomes Data Reporting and Research Program
Clinical Lead: Dr Stephanie Ward, Geriatrician
Registry Contact: Kasey Wallis
Phone: +61 3 9903 0022
Purpose / Aims: The Australian Dementia Network (ADNeT) brings together Australia’s leading dementia researchers into a research and clinical network to create a sustainable, translational research infrastructure that enables ongoing, high quality research and clinical care for Australians living with, or at risk of, cognitive impairment and dementia. The ADNeT Registry is a clinical quality registry (CQR) that will track, benchmark and report on the quality of clinical care of people with dementia and mild cognitive impairment (MCI) to drive quality improvement, identify suitable and willing persons for clinical trials, and systematically collect longitudinal data for research on the determinants, epidemiology and trajectory of cognitive decline.
Population Captured: All persons newly diagnosed with either dementia or mild cognitive impairment from participating memory clinics and individual medical specialists in Australia. The aim is to eventually expand to include all diagnostic settings and services for dementia. Recruitment commenced in March 2020.
Outcomes Collected: Outcomes will include baseline clinical characteristics of persons with dementia or mild cognitive impairment and periodic follow-up clinical data. Information will also be collected from patients at baseline and carers at baseline and periodically via self-completed patient and carer surveys.
Funding Source: NHMRC National Institute for Dementia Research Grant