Australian Dementia Network (ADNeT) Registry

Registry contact: Kasey Wallis
Phone: +61 3 9903 0022
Email: kasey.wallis@monash.edu
Academic Lead: Professor Susannah Ahern
Head, Registry Science and Research
Clinical Lead:Dr Stephanie Ward
Geriatrician
Purpose / aims:The Australian Dementia Network (ADNeT) brings together Australia’s leading dementia researchers into a research and clinical network to create a sustainable, translational research infrastructure that enables ongoing, high quality research and clinical care for Australians living with, or at risk of, cognitive impairment and dementia. The ADNeT Registry is a clinical quality registry (CQR) that will track, benchmark and report on the quality of clinical care of people with dementia and mild cognitive impairment (MCI) to drive quality improvement, identify suitable and willing persons for clinical trials, and systematically collect longitudinal data for research on the determinants, epidemiology and trajectory of cognitive decline.
Population captured:Persons with a clinical diagnosis of dementia or mild cognitive impairment from a participating institution. Recruitment will commence in 2019.
Outcomes collected:Outcomes will include baseline clinical characteristics of persons with dementia and mild cognitive impairment; and follow up patient and carer-reported outcomes. Data linkage will also be explored. Clinical indicators will measure quality of diagnosis, quality of care, access to supports, preventable complication and long term outcomes for persons with dementia.
Funding source:NHMRC – Boosting Dementia Grant