Australian Dementia Network (ADNeT) Registry

Academic Lead:Professor Susannah Ahern
Head, Clinical Outcomes Data Reporting and Research Program
Clinical Leads: Dr Stephanie Ward, Geriatric Medicine
Dr Xiaoping Lin, Research Fellow 
Registry Contact: Ms Kasey Wallis, Program Manager
Phone: 1800 341 421
Purpose / Aims: Primary aim: To collect and analyse data to monitor and enhance the quality of care and patient outcomes for people diagnosed with either dementia or mild cognitive impairment (MCI) and their caregivers.

Secondary aim: To facilitate the recruitment of participants into research, and establish a resource available to all to assist further study into the risk factors for, and trajectory of dementia and MCI in Australia.
Population Captured: People with a new clinical diagnosis of either dementia or MCI.
Outcomes Collected:
  • Baseline and follow-up clinical data
  • Patient- and carer-reported outcome and experience measures
  • Periodic data linkage for information routinely collected by various government bodies such as hospitalisation data
Funding Source:National Health and Medical Research Council (NHMRC); The Wicking Trust; The Yulgilbar Foundation; Dementia Australia, and Neuroscience Research Australia (NeuRA)
Year established: 2019