Lymphoma and Related Diseases Registry (LaRDR)

Registry custodian:Professor Erica Wood
Head, Transfusion Research Unit
Registry contact:Ms Gaya St George
Phone: 1800 811 326
Clinical leads:Associate Professor Stephen Opat, Haematology
Associate Professor Zoe McQuilten, Haematology
Purpose / aims: The aims of the LaRDR are to:
  • monitor access to care
  • benchmark outcomes nationally and internationally
  • explore variation in practice, process and outcome measures
  • monitor trends in incidence and survival
  • explore the factors that influence outcomes including survival and quality of life
  • act as a resource for clinical trials
Population captured: Adult patients with a new diagnosis of non-Hodgkin lymphoma, Hodgkin lymphoma, chronic lymphocytic leukaemia and related diseases in Australia and New Zealand.
Outcomes collected: Demographics, diagnoses, health status at diagnosis, laboratory and imaging results at diagnosis, therapy; including pre-therapy benchmarking, chemotherapy, autologous and allogeneic stem cell transplantation, and maintenance and supportive therapies; outcomes (overall and progression-free survival, duration of response and time to next treatment) and quality of life measures; long-term outcomes (through linkage with cancer and death registries).
Funding sources: Industry partners