Lymphoma and Related Diseases Registry (LaRDR)
|Academic Lead:||Professor Erica Wood|
Head, Transfusion Research Unit
|Clinical Leads:||Professor Stephen Opat, Haematology|
Associate Professor Zoe McQuilten, Deputy Head, Transfusion Research Unit
Professor Stephen Mulligan, Chair, Chronic Lymphocytic Leukaemia Working Group
|Registry Contact:||Eliza Chung or Gaya St George|
Phone: 1800 811 326
|Purpose / Aims:||
The aims of the LaRDR are to:
|Population Captured:||Adult patients with a new diagnosis of non-Hodgkin lymphoma, Hodgkin lymphoma, chronic lymphocytic leukaemia and related diseases in Australia and New Zealand.|
Demographics, diagnoses, health status at diagnosis, laboratory and imaging results at diagnosis, therapy, including pre-therapy benchmarking, chemotherapy, autologous and allogeneic stem cell transplantation, and maintenance and supportive therapies; outcomes (overall and progression-free survival, duration of response and time to next treatment and quality of life measures); long-term outcomes (through linkage with cancer and death registries).
The registry has expanded to include CLL-specific data.
|Funding Source:||Industry partners|