Lymphoma and Related Diseases Registry (LaRDR)
Academic Lead: | Professor Erica Wood Head, Transfusion Research Unit |
Clinical Leads: | Professor Stephen Opat, Haematology Associate Professor Zoe McQuilten, Deputy Head, Transfusion Research Unit Professor Stephen Mulligan, Chair, Chronic Lymphocytic Leukaemia Working Group |
Registry Contact: | Eliza Chung or Gaya St George Email: sphpm-lymphoma@monash.edu Phone: 1800 811 326 |
Purpose / Aims: |
The aims of the LaRDR are to:
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Population Captured: | Adult patients with a new diagnosis of non-Hodgkin lymphoma, Hodgkin lymphoma, chronic lymphocytic leukaemia and related diseases in Australia and New Zealand. |
Outcomes Collected: | Demographics, diagnoses, health status at diagnosis, laboratory and imaging results at diagnosis, therapy, including pre-therapy benchmarking, chemotherapy, autologous and allogeneic stem cell transplantation, and maintenance and supportive therapies; outcomes (overall and progression-free survival, duration of response and time to next treatment and quality of life measures); long-term outcomes (through linkage with cancer and death registries). The registry has expanded to include CLL-specific data. |
Funding Source: | Industry partners |
Website: | lardr.org |