Lymphoma and Related Diseases Registry (LaRDR)

Academic Lead:	Professor Erica Wood Head, Transfusion Research Unit
Clinical Leads:	Professor Stephen Opat Director of Cancer Services, Monash Health Professor Zoe McQuilten Deputy Head, Transfusion Research Unit Associate Professor Eliza Hawkes Lymphoma Lead, Austin Health and LaRDR
Registry contact:	Eliza Chung, Senior Research Officer Email: lymphomaregistry@monash.edu Phone: 1800 811 326
Purpose / aims:	The aims of the LaRDR are to: monitor access to care benchmark outcomes nationally and internationally explore variation in practice, process and outcome measures monitor trends in incidence and survival explore the factors that influence outcomes including survival and quality of life act as a resource for clinical trials
Population captured:	Adult patients with a new diagnosis of non-Hodgkin lymphoma, Hodgkin lymphoma, chronic lymphocytic leukaemia and related diseases in Australia.
Outcomes collected:	Diagnoses, laboratory and imaging results, therapy decisions, including pre-therapy benchmarking, chemotherapy, autologous/allogeneic stem cell transplantation, maintenance and supportive therapies; outcomes (overall and progression-free survival, duration of response and time to next treatment and quality of life measures [using the EQ-5D-5L]); long-term outcomes (through linkage with cancer and death registries). The registry has expanded to include CLL-specific data.
Funding source:	Industry partners
Year established:	2016
Website:	lardr.org