Lymphoma and Related Diseases Registry (LaRDR)

Academic Lead:Professor Erica Wood
Head, Transfusion Research Unit
Clinical Leads: Professor Stephen Opat
Director, Clinical Haematology, Monash Health
 
Associate Professor Zoe McQuilten
Deputy Head, Transfusion Research Unit
Registry Contact:Gaya St George, Senior Research Officer
Email: sphpm-lymphoma@monash.edu
Phone: 1800 811 326
Purpose / Aims: The aims of the LaRDR are to:
  • monitor access to care
  • benchmark outcomes nationally and internationally
  • explore variation in practice, process and outcome measures
  • monitor trends in incidence and survival
  • explore the factors that influence outcomes including survival and quality of life
  • act as a resource for clinical trials
Population Captured: Adult patients with a new diagnosis of non-Hodgkin lymphoma, Hodgkin lymphoma, chronic lymphocytic leukaemia and related diseases in Australia.
Outcomes Collected:

Diagnoses, laboratory and imaging results, therapy decisions, including pre-therapy benchmarking, chemotherapy, autologous/allogeneic stem cell transplantation, maintenance and supportive therapies; outcomes (overall and progression-free survival, duration of response and time to next treatment and quality of life measures [using the EQ-5D-5L]); long-term outcomes (through linkage with cancer and death registries).

The registry has expanded to include CLL-specific data.

Funding Source: Industry partners
Year established: 2016
Website:lardr.org
Reports:

2021 Annual Report (PDF, 409KB)
2020 Annual Report (PDF, 345KB)
2019 Annual Report (PDF, 715KB)