Lymphoma and Related Diseases Registry (LaRDR)

Academic Lead:Professor Erica Wood
Head, Transfusion Research Unit
Clinical Leads:Professor Stephen Opat, Haematology
Associate Professor Zoe McQuilten, Deputy Head, Transfusion Research Unit
Professor Stephen Mulligan, Chair, Chronic Lymphocytic Leukaemia Working Group
Registry Contact:Eliza Chung or Gaya St George
Phone: 1800 811 326
Purpose / Aims: The aims of the LaRDR are to:
  • monitor access to care
  • benchmark outcomes nationally and internationally
  • explore variation in practice, process and outcome measures
  • monitor trends in incidence and survival
  • explore the factors that influence outcomes including survival and quality of life
  • act as a resource for clinical trials
Population Captured: Adult patients with a new diagnosis of non-Hodgkin lymphoma, Hodgkin lymphoma, chronic lymphocytic leukaemia and related diseases in Australia and New Zealand.
Outcomes Collected:

Demographics, diagnoses, health status at diagnosis, laboratory and imaging results at diagnosis, therapy, including pre-therapy benchmarking, chemotherapy, autologous and allogeneic stem cell transplantation, and maintenance and supportive therapies; outcomes (overall and progression-free survival, duration of response and time to next treatment and quality of life measures); long-term outcomes (through linkage with cancer and death registries).

The registry has expanded to include CLL-specific data.

Funding Source: Industry partners