Lymphoma and Related Diseases Registry (LaRDR)

Registry custodian:	Professor Erica Wood Head, Transfusion Research Unit
Registry contact:	Ms Gaya St George Email: sphpm-lymphoma@monash.edu Phone: 1800 811 326
Clinical leads:	Associate Professor Stephen Opat, Haematology Associate Professor Zoe McQuilten, Haematology
Purpose / aims:	The aims of the LaRDR are to: monitor access to care benchmark outcomes nationally and internationally explore variation in practice, process and outcome measures monitor trends in incidence and survival explore the factors that influence outcomes including survival and quality of life act as a resource for clinical trials
Population captured:	Adult patients with a new diagnosis of non-Hodgkin lymphoma, Hodgkin lymphoma, chronic lymphocytic leukaemia and related diseases in Australia and New Zealand.
Outcomes collected:	Demographics, diagnoses, health status at diagnosis, laboratory and imaging results at diagnosis, therapy; including pre-therapy benchmarking, chemotherapy, autologous and allogeneic stem cell transplantation, and maintenance and supportive therapies; outcomes (overall and progression-free survival, duration of response and time to next treatment) and quality of life measures; long-term outcomes (through linkage with cancer and death registries).
Funding sources:	Industry partners
Website:	lardr.org