Haemoglobinopathy Registry (HbR)
Academic Lead: | Professor Erica Wood Head, Transfusion Research Unit |
Clinical Lead: | Professor Joy Ho, Haematology |
Registry Contact: | Melissa Chee, Senior Research Officer Email: hbr@monash.edu Phone: 1800 811 326 |
Purpose / Aims: |
The aims of the HbR are to:
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Population Captured: | Patients with a diagnosis of sickle cell anaemia, ß-thalassemia major and other haemoglobinopathies |
Outcomes Collected: | Demographics, diagnosis, laboratory, clinical and imaging results, complications of disease and therapy, and clinical outcomes |
Funding Source: | Industry partners, Thalassaemia and Sickle Cell Australia, Thalassaemia Society of NSW |
Unit Website: | monash.edu/medicine/sphpm/units/transfusionresearch |