Upper Gastrointestinal Cancer Registry (UGICR)

Registry contact: Ms Jennifer Holland, Registry Coordinator
Phone: +61 3 9903 0323 
Email: Jennifer.Holland@monash.edu
SPHPM Academic Lead:Professor John Zalcberg
Coordinating Principal Investigator
Clinical Leads: Mr Dan Croagh, Hepatopancreatobiliary Working Party
Professor Wendy Brown, Oesophagogastric Working Party
The UGICR is a clinical quality registry designed to describe patterns of care following diagnosis of the following primary upper gastrointestinal cancers: the pancreas; oesophagus; stomach; liver; and biliary system. The aim of this registry is to identify variation in treatment and outcome of patients with upper gastrointestinal cancers, with a view to improving patient outcomes and quality of care.
Population captured: All people aged 18 years or older, who are diagnosed with pancreatic, oesophageal, gastric, primary liver and biliary cancer, that have been diagnosed, assessed or treated in a participating site in Victoria or New South Wales. The registry is currently establishing its pancreatic cancer module in Victoria and New South Wales; and running a pilot of its oesophagogastric module in selected Victorian sites. The additional modules of the registry (biliary and primary liver) are planned for future implementation.
Outcomes collected: The UGICR collects information relating to patient diagnosis, treatment and outcomes with additional data items collected for risk adjustment. The outcomes measured vary between modules.
Funding source: Seed-funding has been provided by the Department of Health and Human Services, Victoria. The Pancare Foundation and industry partners have also contributed to registry funding.