Upper Gastrointestinal Cancer Registry (UGICR)

Academic Lead:Professor John Zalcberg
Head, Cancer Research Program
Clinical Leads: Dr Dan Croagh, Pancreatic Lead, Hepatopancreatobiliary Working Party
Dr Charles Pilgrim, Biliary Lead, Hepatopancreatobiliary Working Party
Professor Wendy Brown, Oesophagogastric Working Party
Registry Contact: Jennifer Holland, Registry Coordinator
Email: ugicr@monash.edu
Phone: 1800 432 231
Purpose / Aims: The UGICR is a clinical quality registry which aims to identify variation in treatment and outcomes of individuals newly diagnosed with a primary cancer of the pancreas; oesophagus; stomach; liver; or biliary system. The UGICR will provide benchmarked reports on agreed indicators of best practice to drive improvements in quality of care and patient outcomes.
Population Captured: All people aged 18 years or older, who are diagnosed with pancreatic, oesophageal, gastric, liver (hepatocellular carcinoma) or biliary system cancer, that have been diagnosed, assessed or treated in a participating site. The Registry’s pancreatic cancer module is active in sites across Victoria and New South Wales. The oesophagogastric module of the registry is being expanded to all Victorian sites in 2019 and a pilot phase of the bilary system module is underway. A liver cancer module is planned for future implementation.
Outcomes Collected: The UGICR collects information relating to patient diagnosis, treatment and outcomes; with additional data items collected for risk adjustment and patient demographics. The outcomes measured vary between modules. In 2019 the UGICR will begin collecting patient reported outcomes for participants with pancreatic cancer.
Funding Source: Victorian Government provided initial seed-funding for the UGICR. The Pancare Foundation and industry partners have also sponsored this registry. The registry is also supported by a related NHMRC project grant.