Thrombotic Microangiopathies (TMA) Registry

Academic Lead:Professor Erica Wood
Head, Transfusion Research Unit
Clinical Lead: Associate Professor Solomon Cohney, Nephrologist
Registry Contact:Helen Haysom
Phone: 1800 811 326
Purpose / Aims: The aims of the TMA Registry are to:
  • better define the incidence, natural history and clinical outcome of TMAs
  • provide information on the range of therapeutic strategies being employed in the treatment of TMA patients
  • explore factors influencing clinical outcomes
  • better define optimal management of TMA patients
Population Captured: Data on all patients suffering from a TMA are collected and entered onto a central database.
Outcomes Collected: Demographics, diagnoses, clinical and laboratory and imaging results, therapy, complications of disease and therapy, transfusion support requirements, and clinical outcomes
Funding Source: Industry partners