National Gynae-Oncology Registry

Academic Lead:Professor John Zalcberg
Head, Cancer Research Program
Clinical Lead: Associate Professor Robert Rome, Gynaecological Oncologist, Epworth Healthcare
Registry Contact: Natalie Heriot
Phone: +61 3 9903 0435
Purpose / Aims: NGOR is a new clinical quality registry for gynaecological cancers, which is currently piloting the first module, an ovarian cancer registry. Other modules are planned in the future for cancers of the cervix, uterus, vulva, vagina and other gynaecological malignancies. The aim of the registry is to provide benchmarked reports to clinicians on agreed indicators of quality of care, in order to facilitate improvements in care and patient outcomes.
Population Captured: The pilot of the ovarian cancer module captures all newly diagnosed patients with ovarian, tubal and peritoneal (OTP) cancers being treated at several participating hospitals in Victoria, New South Wales and Tasmania. The registry plans to expand nationally and to roll out other modules in the future.
Outcomes Collected:

OTP module:

  • completeness of disease staging
  • residual disease after debulking surgery
  • appropriateness of treatment/care
  • intra-operative and post-operative complications
Funding Source: The CASS Foundation
Ovarian Cancer Australia
Australian Society of Gynaecologic Oncologists