National Gynae-Oncology Registry (NGOR)

Academic Lead:Professor John Zalcberg
Head, Cancer Research Program
Clinical Lead: Associate Professor Robert Rome, Gynaecological Oncologist, Ovarian, Tubal and Peritoneal Working Group Chair
Registry Contact: Natalie Heriot
Phone: +61 3 9903 0435
Purpose / Aims: The NGOR is an Australian clinical quality registry that measures and monitors patterns of care following diagnosis of cancers of the female reproductive system. The aim of this registry is to identify variation in the treatments and outcomes of patients with newly diagnosed gynaecological cancers, and with benchmarked reports on agreed clinical quality indicators, it strives to drive improvements in quality of care and patient outcomes.
Population Captured:

A person is eligible to the NGOR if they:

  • are 18+ years old
  • have been recently diagnosed with a gynaecological cancer
  • were diagnosed or received treatment for their cancer at a hospital that is participating in NGOR
  • do not need an interpreter and/or are believed to understand written English

The registry’s ovarian, tubal and peritoneal (OTP) cancer module is active in sites across Victoria, New South Wales, Tasmania and Western Australia. The endometrial, cervical and vulvovaginal cancer modules are in development.

Outcomes Collected:

The NGOR collects information relating to patient care pathways. For the existing module, some of the outcomes collected include:

  • completeness of disease staging
  • residual disease after debulking surgery
  • appropriateness of treatment/care
  • intra-operative and post-operative complications
Funding Source: The CASS Foundation
Ovarian Cancer Australia
Australian Society of Gynaecologic Oncologists
The Epworth Medical Foundation (The Audrey Voss Gynaecological Cancer Research Grant)