National Gynae-Oncology Registry (NGOR)

Academic Lead:	Professor John Zalcberg AO Medical Oncologist
Clinical Lead:	Associate Professor Robert Rome Gynaecological Oncologist
Registry contact:	Dr Sharnel Perera, Program Manager Email: ngor@monash.edu Phone: 1800 432 231
Purpose / aims:	NGOR is an Australian clinical quality registry that measures and monitors patterns of care following diagnosis of cancers of the female reproductive system. The aim of this registry is to identify variation in the treatments and outcomes of patients with newly diagnosed gynaecological cancers, and with benchmarked reports on agreed clinical quality indicators, it strives to drive improvements in quality of care and patient outcomes.
Population captured:	A person is eligible to NGOR if they: are 18+ years old have been recently diagnosed with a gynaecological cancer The registry's Epithelial OTP Cancer, Non-Epithelial Ovarian Cancer, Endometrial Cancer and Cervical Cancer modules are active across Australia. Data collection for the Vulvar Cancer Module is awaiting funding.
Outcomes collected:	NGOR collects information relating to patient care pathways. diagnostic procedures such as imaging and biopsies surgical treatment and outcomes, including intraoperative and postoperative adverse events, and surgical margins non-surgical treatment, such as chemotherapy, radiotherapy, immunotherapy, etc. genetic procedures and outcomes, such as BRCA and HRD testing
Funding sources:	Australian Society of Gynaecologic Oncologists CASS ('Contributing to Australian Scholarship and Science') Foundation Medical Research Future Fund (MRFF) Ovarian Cancer Australia The Epworth Medical Foundation Generous philanthropic contributions
Year established:	2017
Website:	ngor.org.au

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