Archive
Registry SIG Presentations Archive
2017
| Presentation | Presenter / Organisation |
|---|---|
| Australian Breast Device Registry (ABDR) Patient Reported Outcome Measure (PROM) Pilot Study (PDF, 2.3MB) | Dr Nicole Ng – Monash University |
| Global Prostate Cancer Outcomes Registry – PCOR and the Delphi Project (PDF 2.9MB) | Associate Professor Sue Evans – Monash University |
| Victorian review of safety of hospital care (PDF, 1.9MB) Dr Stephen Duckett – GRATTAN Institute | |
| The Victorian Cardiac Outcomes Registry: Improving clinical care in real time (PDF, 3.2MB) Associate Professor Jeff Lefkovits – Victorian Cardiac Outcomes Registry | |
| Do registries pay their way? – Estimating the economic impact of 5 mature registries in Australia (PDF, 1.3MB) | Dr Neil Soderlund – Quantium Health Outcomes |
| The value of clinical quality registries is clear, where we are going from here: An update on the Commission's work (PDF, 3.0MB) | Dr Robert Herkes – Australian Commission on Safety and Quality in Health Care |
2016
| Presentation | Presenter / Organisation |
|---|---|
| The doable, conceivable and improbable using unstructured and structured health data | Federico Girosi – Western Sydney University, Capital Markets Cooperative Research Centre |
| The Victorian Injury Surveillance Unit (VISU) – a valuable data resource for injury research, policy and practice | Janneke Berecki-Gisolf – Victorian Injury Surveillance Unit |
| Rise of the Sentinel | Geoffrey Cloud – Alfred Health |
| ADHA's vision and strategy around digital health for Australia | Tim Kelsey – Australian Digital Health Agency |
| Inclusion of the patients’ perspective in the development of patient-reported outcome measures used in elective coronary revascularisation: A narrative review | Geeske Peeters – Monash University |
| A scoping study for a national dementia registry in Australia | Karolina Krysinska – Dementia Collaborative Research Centre, University of New South Wales |
| Self-controlled case-series method: An analytic approach for registry data | StellaMay Gwini – Monash University |
| The Australian Stroke Clinical Registry: achievements and aspirations | Nadine Andrew – Australian Stroke Clinical Registry (AuSCR), Monash University |
| The Australia and New Zealand Fontan Registry: A large bi-national collaboration in congenital heart disease | Yves d'Udekem – Royal Children's Hospital |
| Streamlining of ethics and site assessment in Victoria and for National Mutual Acceptance | Dr Suzanne Hasthorpe – Manager, Coordinating Office for Clinical Trial Research |
2015
| Presentation | Presenter / Organisation |
|---|---|
| Overview of the Secure Unified Research Environment (SURE) | Jo Khoo – Sax Institute |
| The Victorian Streamlined Review Process and the National Mutual Acceptance (NMA) Streamlined Review Processes Australian Breast Device Registry |
Angela Henjak – Alfred Health Vanessa Fox – Australian Breast Device Registry |
| The Fight Retinal Blindness Registry of Outcomes of treatment of Macular Degeneration | Mark Gillies – Save Sight Institute, The University of Sydney |
| Australia and New Zealand Neonatal Network (ANZNN) – Collaborative Network for Neonatal Care | Kenneth Tan – Neonatologist, Monash Children's Hospital |
| An update on the Australasian Cardiac Outcomes Registry (ACOR) | Lin Turnbull – CEO, Australasian Cardiac Outcomes Registry (ACOR) |
| Measuring complexity in the complex General Medical patient using a novel patient engagement tool: the Team And Patient Alignment score (TAPAS) | Harvey Newnham – Clinical Program Director of Emergency and Acute Medicine, Director of General Medicine, Alfred Health |
| Connecting up our health system – eHealth Foundations and Beyond | Dr Steve Hambleton – Chair, National E-Health Transition Authority (NEHTA) |
|
The Coronary Angiogram Database of South Australia (CADOSA) Registry * slides unavailable for website | Professor John Beltrame and Dr Rosanna Tavella, Coronary Angiogram Database of South Australia (CADOSA) |
2014
| Presentation | Presenter / Organisation |
|---|---|
| Spleen Registry: Victorian Spleen Service/Registry, now Spleen Australia – 11 years in the making | Penny Jones – Manager, Spleen Australia |
| Clinical Registries and Quality Improvement, with case studies from cystic fibrosis |
Geoff Sims – Manager, Australian Cystic Fibrosis Data Registry |
| The Australian Stroke Clinical Registry: progress and future plans | Brenda Grabsch – Manager, Australian Stroke Clinical Registry (AuSCR) |
| Improving health outcomes: the Victorian Cardiac Outcomes Registry (VCOR) | Jeff Lefkovits – Clinical Lead, Victorian Cardiac Outcomes Registry (VCOR) |
| APCCR – Australian Prostate Cancer Clinical Registry | A/Prof Sue Evans – Registry Custodian, The Australian Prostate Cancer Clinical Registry (APCCR) |
| ANZSCTS National Cardiac Surgery Database Program | Lavinia Tran – Manager, ANZSCTS (Australia and New Zealand Society of Cardiac and Thoracic Surgeons) National Cardiac Surgery Database Program |
| Evaluating vaccine effectiveness using registry data: an example of data linkage between the Victorian Cervical Cytology Registry and the National HPV Vaccination Register | A/Prof Dorota Gertig – Medical Director, Victorian Cervical Cytology Registry |
| Opt out consent: the new frontier | Ian Olver AM – CEO, Cancer Council Australia |
2013
| Presentation | Presenter / Organisation |
|---|---|
| Ethics approval of National Death Index linkages | Gary Kent – Head, Governance Unit, Australian Institute of Health and Welfare (AIHW) |
| Australasian Rehabilitation Outcomes Centre – Establishing and Maintaining a National Clinical Registry | Frances Simmonds – Director, Australasian Rehabilitation Outcomes Centre (AROC) |
| The challenges in choosing an IT platform for a registry – Lessons from AROC, PCOC and ePPOC | Dave Webster – Senior Research Fellow, Australian Health Services Research Institute |
| The Aus-ROC Out-of-Hospital Cardiac Arrest 'Epistry' – the process and challenges in the establishment of the Epistry so far | Janet Bray – Research Fellow, Australian Resuscitation Outcomes Consortium (Aus-ROC) |
| AusTQIP incorporating the Australian Trauma Registry – Challenges and Achievements for National Collaboration and Data Sharing | Meng Tuck Mok – Manager, Australian Trauma Registry (ATR) and Nathan Farrow – Manager, Australian Trauma Quality Improvement Program (AusTQIP) |
| The Mobile Registry – using smartphones to transform prospective data collection | Dr Hugo Stephenson – international expert in observational studies and clinical registries |
| Funding for Clinical Quality Registries – Cardiac Registry examples Funding Models for Clinical Registries |
Prof Christopher Reid – Chief Investigator, Victorian Cardiac Outcomes Registry (VCOR) Sue Huckson – Manager, Australian and New Zealand Intensive Care Society Centre for Outcome and Resource Evaluation (ANZICS CORE) |
| Compensation Research Database: using administrative claims data on compensated injuries | Rasa Ruseckaite – Compensation Research Database Team Leader, Institute for Safety, Compensation and Recovery Research (ISCRR) |
| Increasing capacity to share registry data |
David Groenewegen Director, Research Infrastructure, Monash University Library |
2012
| Presentation | Presenter / Organisation |
|---|---|
|
Victorian Ambulance Cardiac Arrest Registry * slides unavailable for website | Marijana Lovic – Senior Research Fellow, Victorian Ambulance Cardiac Arrest Registry (VACAR) |
| The contribution of clinical outcomes registries globally |
Neil Soderlund – Partner and Managing Director, Boston Consulting Group (BCG) Phil Barker – Associate Consultant, Boston Consulting Group (BCG) |
| An Australian Radiation Oncology Register Pilot: Development and Future Use |
Mel Grand – Special Projects Manager, TROG Tomas Kron – Principal Research Physicist, Peter MacCallum Cancer Centre |
| Pilot of a Population-Based Prostate Cancer Registry – an update | A/Prof Sue Evans – Registry Custodian, Victorian Prostate Cancer Registry |
| PERFECT Stroke – the Finnish National Stroke Registry | Atte Meretoja – Neurologist, Finnish National Stroke Registry, Helsinki University Central Hospital |
| Australian Stroke Clinical Registry (AuSCR) – an update | Brenda Grabsch – Senior Project Manager, Australian Stroke Clinical Registry (AuSCR) |
| Out-of-hospital cardiac arrest registry ('Epistry') | Prof Judith Finn – Director, Australian Resuscitation Outcomes Consortium (Aus-ROC) |
| Presenting data The use of measurement in quality improvement Appended documents: NHHRC Indicators and VQC Guide to Using Data |
A/Prof Sue Evans – Associate Director Damien Jolley – Senior Biostatistician Centre of Research Excellence in Patient Safety (CREPS), Monash University |
| Developing national arrangements for clinical quality registries | Nick Wilcox – Clinical Quality Registries Project, Australian Commission on Safety and Quality in Health Care (ACSQHC) |
| Bi-National Burns Registry – 2 years on | Natalie Picton – Project Coordinator, Bi-National Burns Registry |
2011
| Presentation | Presenter / Organisation |
|---|---|
| Colorectal Cancer Registry | Paul McMurrick – Head, Department of Surgery, Cabrini Monash University |
| Consent and ethical issues facing clinical registries: the Australian Ethics Committee perspective | Sandra Hacker – Chair, Australian Health Ethics Committee of the National Health and Medical Research Council (NHMRC) |
| Data governance – the conflict between health processes and information | Robert Hillard – Partner, Deloitte Australia |
| Data development activity in health | Mel Taylor – Leader of the Metadata Information Services Unit, Australian Institute of Health and Welfare (AIHW) |
| ANZTADC anaesthetic incident reporting system | Martin Culwick – Medical Director, Australian and New Zealand Tripartite Anaesthetic Data Committee (ANZTADC) |
Establishing a new clinical quality registry: the lung cancer registry experience | Sue Evans – Registry Custodian, Victorian Lung Cancer Registry |
| What to do with missing data in clinical registry analysis | Rory Wolfe – Biostatistician, Monash University |
| Haemostasis Registry – data auditing | Louise Phillips – Head, Transfusion Research Unit |
| Statewide surveillance program for healthcare associated infections | Ann Bull – Victorian Hospital Acquired Infection Surveillance System (VICNISS) Registry |
| Economic appraisal in health care | Anthony Harris – Deputy Director, Centre for Health Economics, Monash University |
2010
| Presentation | Presenter / Organisation |
|---|---|
|
IT solutions and the Australian Motor Neuron Disease Registry * slides unavailable for website |
Paul Talman – Chairperson of the Steering Committee, Australian Motor Neuron Disease Registry (AMNDR) Charlie Corke – Director of Intensive Care, Repatriation Hospital, Melbourne |
| Problems, Pitfalls and Possible Successes in obtaining Medicare Data |
Maree Williams – Biostatistician Margaret Staples – Project Coordinator Australian Rheumatology Association Database (ARAD) |
| Achieving Sustainable Funding | Heather Wellington – Consultant, DLA Phillips Fox Health Law Practice |
| Australian Stroke Clinical Registry | Dominique Cadilhac – Head, Public Health, National Stroke Research Institute |
| MSBase Registry: a multiple sclerosis registry | Helmut Butzkueven – Neurologist, Royal Melbourne Hospital |
| Pilot of a prostate cancer clinical quality registry: challenges and milestones | Sue Evans – Associate Director, CREPS, Monash University |
| Registry guidelines for Institutional Ethics Committees |
John McNeil – Head, School of Public Health and Preventive Medicine Sue Evans – Associate Director, CREPS, Monash University |
2009
| Presentation | Presenter / Organisation |
|---|---|
| The impact of ehealth on clinical registries: what does the future hold? | Karen Gibson – National E-Health Transition Authority (NEHTA) |
| Long term patient outcomes data: VSTORM | Belinda Gabbe – Principal Investigator, Victorian State Trauma Registry (VSTORM) |
| ANZICS Outcomes Audit and Research | Graeme Hart – Director, ANZICS Research Centre for Critical Care Research |
| What is the role of ICNARC? | Kathy Rowan – Director, Intensive Care National Audit and Research Centre (ICNARC) (UK) |
|
Cardiac procedures registry * slides unavailable for website |
Christopher Reid – Associate Director Carl Costolloe – Senior Research Fellow Kate Evans Centre of Cardiovascular Research and Education (CCRE) in Therapeutics |
| The registry of registries: evaluating attributes of Australian clinical registries | Sue Evans – Associate Director, CREPS, Monash University |
|
Legal issues relating to the establishment and management of clinical registries * no slides used | Bob Milstein – Medicolegal Lawyer, Corrs Chambers Westgarth |
| Live data feeds and use of HL7 in Clinical Cancer Registries: lessons in how to receive data quickly and in a standardised format |
Neville Board – Information Strategy Manager, Australian Commission on Safety and Quality in Health Care (ACSQHC) Neil Heron – Cancer Information Manager, Northern Sydney Central Coast Area Health Service (NSCCAHS) |
| ANZDATA: a recipe for how it works | Stephen McDonald – Convenor, Australia and New Zealand Dialysis and Transplant Registry (ANZDATA) |
2008
| Presentation | Presenter / Organisation |
|---|---|
| AOA – National Joint Replacement Registry – Does it result in a change of practice? | Richard de Steiger – Deputy Director, Australian Orthopaedic Association (AOA), National Joint Replacement Registry |
| ANZICS: Presenting data | David Cook – Intensivist, Princess Alexandra Hospital Queensland |
| The evolution and utility of a national stroke registry: the Swedish experience | Thomas Linden – Visiting Research Fellow, National Stroke Research Institute, Gothenburg (Sweden) |
| How to run a successful registry: lessons from the USRDS | Allan J Collins – Director, United States Renal Data Services (USRDS) |
| Record Linkage at the Department of Human Services, Past and Future | Vijaya Sundararajan – Senior Medical Advisor, Funding Health Information Policy, Department of Human Services (DHS) |
| BioGrid Australia: linking data | Henry Gasko – Life Sciences Coordinator, Bio Grid Australia |
| Registry Operating Standards |
Sue Evans – Associate Director Peter Cameron – Director CREPS, Monash University |
| The use of web data management systems for registries | Andrew Hannaford – Information Systems Manager, Clinical Data Management Centre, Monash University |
|
Privacy issues * slides unavailable for website | Brad Crammond – Monash University |
| Australian Clinical Quality Registries Update | Niall Johnson – Australian Commission on Safety and Quality in Health Care (ACSQHC) |
2007
| Presentation | Presenter / Organisation |
|---|---|
| Victorian Spleen Registry | Penny Jones – Manager, Victorian Spleen Registry |
|
ANZDATA * slides unavailable for website | Rowan Walker – Australia and New Zealand Dialysis and Transplant Registry (ANZDATA) |
| VSTORM: progressing to population-based monitoring of long term outcomes | Belinda Gabbe – Principal Investigator, Victorian State Trauma System (VSTORM) |
| Haemostasis Registry | Louise Phillips – Head, Transfusion Research Unit |