Thrombotic Thrombocytopenia Purpura / Thrombotic Microangiopathies Registry (TTP/TMA)
Academic Lead: | Professor Erica Wood Head, Transfusion Research Unit |
Clinical Lead: | Associate Professor Solomon Cohney, Nephrologist |
Registry Contact: |
Tina van Tonder Email: tmaregistry@monash.edu Phone: 1800 811 326 |
Purpose / Aims: |
The aims of the TTP/TMA Registry are to:
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Population Captured: | Data on all patients suffering from a TMA are collected and entered onto a central database. |
Outcomes Collected: | Demographics, diagnoses, clinical and laboratory and imaging results, therapy, complications of disease and therapy, transfusion support requirements, and clinical outcomes |
Funding Source: | Industry partners |
Unit Website: | monash.edu/medicine/sphpm/units/transfusionresearch |