Thrombotic Thrombocytopenia Purpura / Thrombotic Microangiopathies Registry (TTP/TMA)

Academic Lead:Professor Erica Wood
Head, Transfusion and Blood Diseases
Clinical Lead: Associate Professor Solomon Cohney, Nephrologist
Registry Contact: Tina van Tonder
Email: med-ttpregistry@monash.edu
Phone: 1800 811 326
Purpose / Aims: The aims of the TTP/TMA Registry are to:
  • better define the incidence, natural history and clinical outcome of TTP and other TMAs
  • provide information on the range of therapeutic strategies being employed in the treatment of TMA patients
  • explore factors influencing clinical outcomes
  • better define optimal management of TMA patients
Population Captured: All patients suffering from a thrombotic microangiopathy (including TTP and atypical haemolytic uraemic syndrome) at participating sites.
Outcomes Collected: Demographics, diagnoses, clinical and laboratory and imaging results, therapy, complications of disease and therapy, transfusion support requirements, and clinical outcomes
Funding Source: Industry partners
Unit Website:monash.edu/medicine/sphpm/units/transfusionresearch