Thrombotic Thrombocytopenia Purpura / Thrombotic Microangiopathies Registry (TTP/TMA)

Registry custodian:Associate Professor Erica Wood
Head, Transfusion Research Unit
Registry contacts: Associate Professor Erica Wood
Email: med-ttpregistry@monash.edu
Phone: 1800 811 326
Clinical leads:
  • Associate Professor Shlomo Cohney, Nephrology
  • Dr Piers Blombery, Haematology
Purpose / aims: The aims of the TTP/TMA Registry are to:
  • better define the incidence, natural history and clinical outcome of TTP and other TMAs
  • provide information on the range of therapeutic strategies being employed in the treatment of TMA patients
  • explore factors influencing clinical outcomes
  • better define optimal management of TMA patients
Population captured: Data on all patients suffering from a TMA are collected and entered onto a central database
Outcomes collected: Demographics, diagnoses, clinical and laboratory and imaging results, therapy, complications of disease and therapy, transfusion support requirements, and clinical outcomes
Funding source: Industry partners
Website:monash.edu/medicine/sphpm/units/transfusionresearch