Monash Epilepsy Consumer Advisory Panel (EpiCAP)
Monash Epilepsy Consumer Advisory Panel (EpiCAP)
At EpiCAP, we believe research is most impactful when shaped by the voices of those it affects. By connecting with people and communities at the heart of the issues, we gain valuable insights from lived experiences. This ensures our research addresses real clinical needs, builds trust, and drives meaningful changes.
Our vision is to enhance collaboration between consumers, researchers, and the community to improve treatment, care and ultimately, cure for epilepsy.
Meet the Coordinating Researchers
Who can join?
We are looking for people in the community with lived experience of epilepsy, including:
- People living with epilepsy
- Caregivers or family members
- Support professionals (nurses, teachers, allied health workers, community service providers)
What’s involved?
As part of the EpiCAP panel, you will be invited to:
- Share your insights and experiences
- Help shape research that is meaningful and relevant to real world needs
- Engage in networking through meet-and-greet sessions with researchers
Ready to become part of EpiCAP?
If you would like information on becoming part of Monash Epilepsy Consumer Advisory Panel, please contact us by email at epicap@monash.edu — we’d love to hear from you.
Support EpiCAP
EpiCAP is dedicated to improving the diagnosis, treatment, and care of epilepsy by bringing together researchers and the epilepsy community. Through engagement activities like educational content, surveys, focus groups, and research partnerships, EpiCAP ensures the voices of those living with epilepsy shape research and care.
Your support will help fund programs that connect researchers with the epilepsy community, raise awareness, co-create projects, and move us closer to better care and a cure.
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