Community engagement at the Australian Centre for Blood Diseases
The Australian Centre for Blood Diseases (ACBD) is committed to improving engagement and participation of members of the community within our health and medical research programs. Community representatives (often referred to as 'Consumers'), who have a lived experience of a health issue, provide a unique and valuable perspective on health and medical research, ensuring research performed at the ACBD is relevant, impactful and always undertaken with the patient, carer and/or family member perspective at the forefront of experimental design.
We are proud to partner with the Alfred Foundation in supporting community engagement at the ACBD.
Why is this important?
- To raise awareness in community and patient groups about how medical research is performed.
- Allows active participation of community representatives in identifying key research priorities and experimental questions within the ACBD.
- Provide researchers with a unique perspective on the impacts of specific health conditions on patients, carers and their family members.
- Provide transparency in research and enable rapid dissemination of research findings to the broader community.
- Enhance community understanding of the importance of basic research if cures or treatments are to be found and implemented.
- Enhance public confidence in research and raise awareness of research programs within the ACBD.
Community and Researcher Engagement (CARE) Committee
Our Community and Researcher Engagement (CARE) Committee aims to facilitate valuable and productive interactions and connections between community representatives and researchers within the ACBD. We support both the researchers and their community representative partners in a variety of ways. This includes, providing a framework for interaction, links to training workshops and information/training to ensure each partnership is valued and productive. We also run an annual symposium, meet and greet events, online networking forums and laboratory tours for members of the community who are connected to the ACBD through our Community Engagement Group.
2021 ACBD/CCS Community and Researcher Engagement (CARE) Committee. L-R: Top row: Dr. Donia Moujalled, Dr. Ioanna Savvidou, Dr. Cedric Tremblay, Dr. Karen Alt (Deputy Chair), Dr. Michelle Zajac. L-R: Bottom row: Dr. Catherine Carmichael (Chair), Dr. Fiona Brown, A/Prof. Matthew McCormack, Absent: Mr. Ken Young and Ms. Anna Steiner
- Chair: Dr. Catherine Carmichael Catherine.firstname.lastname@example.org
- Deputy Chair: Dr. Karen Alt email@example.com
- Consumer Representative: Mr Ken Young
- Consumer Representative: Ms Anna Steiner
- Dr. Donia Moujalled firstname.lastname@example.org
- Dr. Cedric Tremblay email@example.com
- Dr. Fiona Brown Fiona.firstname.lastname@example.org
- Dr. Michelle Zajac email@example.com
- Dr. Ioanna Savvidou firstname.lastname@example.org
- Dr. Loretta Piccenna email@example.com
- Dr. Bridgette Semple firstname.lastname@example.org
- Ms. Tiffany Rushen email@example.com
Social media team
- Ms. Jurie Taskandi firstname.lastname@example.org
- Dr. Omar Ibrahim email@example.com
- Ms. Juliana de Castro firstname.lastname@example.org
2021 CARE Committee social media team. L-R: Top row: Ange Bishop (consumer engagement coordinator), Jurie Tashkandi. L-R: Bottom row: Dr. Omar Ibrahim and Ms.Juliana de Castro.
- A/Prof Matthew McCormack
- Ms. Jen Cheung