ADNeT Registry brings latest dementia innovation to clinicians
Source: Adobe Stock, By: kaliel
A new report demonstrates how clinicians around Australia are accessing best practice data to develop and refine their care for Australians living with dementia.
Releasing its 2024 Annual Report this week, the Australian Dementia Network (ADNeT) Registry shared its latest achievements in a public webinar to an audience of clinicians, researchers, policy makers, and people living with dementia and their families. The ADNeT Registry is a crucial data asset for monitoring the quality of diagnosis and care for people with mild cognitive impairment and dementia in Australia, thereby driving improvements in patient outcomes. Funded under the auspices of the wider ADNeT program, the registry is administered by Monash University’s School of Public Health and Preventive Medicine and leverages the School’s significant leadership and expertise in registry science.
In the past 12 months the Registry has expanded to support the introduction to Australia of the first disease-modifying therapies shown to slow the progression of Alzheimer’s disease, with donanemab approved by the Therapeutic Goods Administration in May 2025.
The ADNeT Registry captures data from a diverse group of Australians newly diagnosed with dementia or mild cognitive impairment (MCI), including those from regional and remote settings, and culturally and linguistically diverse backgrounds.
The ADNeT Registry is a crucial data asset for monitoring the quality of diagnosis and care for people with mild cognitive impairment and dementia in Australia, thereby driving improvements in patient outcomes. Funded under the auspices of the wider ADNeT program, the registry is administered by Monash University’s School of Public Health and Preventive Medicine, and leverages the School’s significant leadership and expertise in registry science. The Registry provides data-driven insights that inform clinical practice, shape policy, and support research to improve access to high-quality care.
Key findings in the 2024 report include:
- 2,619 new participants recruited, bringing the total to 6,898 participants recruited across 74 contributing sites across all states in Australia
- Delivery of 130 benchmark reports to clinical sites to drive continuous improvement
- Awarding of a prestigious grant from Alzheimer’s Association (US) for the establishment of a Real-World Data Platform to support post-market surveillance of new disease-modifying therapies and facilitate international collaborations
In the past 12 months, the ADNeT Registry incorporated new data elements on potentially modifiable risk factors for dementia, such as smoking and hearing impairment.
The Full version of the 2024 ADNeT Registry Annual Report can be found here
About Australian Dementia Network (ADNeT):
The Australian Dementia Network (ADNeT) is a national initiative of 21 clinical and academic institutions committed to improving the lives of people living with dementia and MCI. The ADNeT Registry, managed by Monash University, and supported by the University of Melbourne and the University of New South Wales Centre for Health Brain Ageing (CHeBA). It collects and analyses critical data to inform clinical practice, support research, and shape policy, ensuring that all Australians living with dementia and MCI have access to high-quality care. The ADNeT Registry is supported by funding from the Australian Government Department of Health, Disability and Ageing under the National Clinical Quality Registry Program. For more information on the ADNeT Registry, visit www.australiandementianetwork.org.au/initiatives/clinical-quality-registry/
About Monash University
Monash University is Australia’s largest university with more than 80,000 students. In the 60 years since its foundation, it has developed a reputation for world-leading high-impact research, quality teaching, and inspiring innovation.
With four campuses in Australia and a presence in Malaysia, China, India, Indonesia and Italy, it is one of the most internationalised Australian universities.
As a leading international medical research university with the largest medical faculty in Australia and integration with leading Australian teaching hospitals, we consistently rank in the top 50 universities worldwide for clinical, pre-clinical and health sciences.
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