Patient reported outcome measures (PROMs) for clinical registries - PDM1146

The workshop is aimed at a non-technical audience and is suitable for people without previous experience in PROMs. The course has been developed as a series of brief presentations, hands-on exercises and break-out group discussions.

At a glance

Fees

  • Early bird: $500 incl. GST
  • Full fee: $550 incl. GST

Alumni discounted fees

  • 10% early bird discount for registrations received before 30 November 2025
  • 10% discount for Monash University staff and alumni and Alfred Health staff
  • 50% discount for undergraduate & postgraduate students

Who should attend

The workshop is aimed at a non-technical audience and is suitable for people without previous experience in PROMs, including clinicians, researchers, registry coordinators and other healthcare professionals and anyone else interested in PROMs data collection in a clinical registry setting.

What will you learn

On completion of this course participants will be able to:

  • Gain a practical understanding of the key concept around PROMs – what they measure and why use them in a clinical registry setting
  • Consider practicalities when choosing the appropriate PROM based on a conceptual framework model and guidelines for the use of PROMs in clinical registries
  • Gain greater insight into the different types of PROMs available, issues of validity and reliability, interpretation, data analysis and reporting in a registry setting

Program structure

This introductory one-day course will give an overview of topics ranging from methodological development through to dissemination of PROMs data, including:

  • What is a PROM and why use them?
  • A look at the different types of information we can get from a PROM
  • Instruments used to collect PROMs
  • Disease- specific PROMs vs generic instruments
  • Development and validation of PROMs
  • Item banks and their use in clinical registries
  • PROMs response rates in clinical registries
  • Administration and frequency of PROM in a registry setting
  • Interpreting and presenting PROM data in a registry setting

Rasa-Ruseckaite

Dr Rasa Ruseckaite

Dr Rasa Ruseckaite is an Associate Professor and Deputy Head (Qualitative Research) with the Clinical Outcomes Data Reporting and Research Program at the School of Public Health and Preventive Medicine, Monash University. With an undergraduate degree in Science, Rasa has a Master of Science and two PhDs; one in Applied Computer Science and the other in Neuroscience.

As a Deputy Academic Lead of the Australian Cystic Fibrosis Data Registry (ACFDR) Rasa is responsible for all aspects of the registry data management including acquisition of a good quality data, also analysis, interpretation and reporting.

Learn more about Dr Rasa Ruseckaite

Learn more about the program's terms and conditions.